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“Not beyond us” – Recognizing World Cancer Day

The Union for International Cancer Control (UICC) has organized today, February 4th, as World Cancer Day. This year’s theme: “Not beyond us.” It’s about highlighting that solutions to cancer are within our reach. Awareness is not beyond us. Prevention is not beyond us. And a cure is not beyond us. The UICC is encouraging everyone to take a positive and proactive approach in the fight against cancer by working towards these four goals: Choosing healthy lives Delivering early detection Achieving treatment for all Maximizing quality of life You can become part of the World Cancer Day effort and raise awareness about what needs to be done. Whether it’s at an individual, community, governmental or global level, you can help in the fight. Visit the World Cancer Day website to learn how to get involved. On social media, you can use the hashtags #WorldCancerDay and #NotBeyondUs to share your story Add to the World Cancer Day online Map of Events and activities, and share what you’re doing on World Cancer Day Share one of the World Cancer Day 2015 posters What are PatientsLikeMe members sharing about their journeys with cancer? PatientsLikeMe member Glow4life was diagnosed with lung cancer (adenocarcinoma) this past June, and …

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A decade of psoriasis awareness

Today marks the ten-year anniversary of World Psoriasis Day, a day with four goals: raise awareness for the condition, improve access to treatment, increase understanding of known information and build unity among the global psoriasis community. And after ten years of raising awareness, it’s time to step it up a notch. Tomorrow, the International Federation of Psoriasis Associations (IFPA) is going to create a tidal wave of awareness on social media with their “Thunderclap” campaign. Join in here or click the sidebar on the right. When you join the movement, a World Psoriasis Day message will automatically be posted on your Facebook, Twitter or Tumblr account at 12:00pm Central European Time (7:00am on the east coast). You can share your own message with the #psoriasis and #WPD14 hashtags as well. Check out some of our past posts on psoriasis, including the results of our “Uncovering Psoriasis” surveys, patient interviews (with Maria, David and Erica) and what doctors Jerry Bagel and Steve Feldman had to say about psoriasis. And if you’re living with psoriasis, don’t forget to connect with the community at PatientsLikeMe – more than 4,800 people are sharing their experiences and stories with each other. Share this post on Twitter and …

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Coming together to recognize World Aids Day

We believe that the best way to live better is by sharing real-world health experiences with each other, and today, PatientsLikeMe and aids.gov are encouraging everyone to share their own stories with HIV and AIDS. The theme of this year’s World Aids Day is “Shared Responsibility: Strengthening Results for an AIDS-Free Generation,” and you can participate by reaching out and speaking with the global HIV/AIDS community. If you’re wondering about HIV/AIDS, did you know that… Over 30 million people are living with HIV/AIDS worldwide, including over a million people in the United States1 Many people with HIV don’t experience any symptoms until they progress toward AIDS, and as a result…1 1 in 5 Americans living with HIV/AIDS are unaware of their condition2 So, how can you do your part to raise awareness today (and beyond) and help people learn more about this condition? You can: Plan your own event using Aids.gov guidelines Check out their Facing AIDS photo gallery and submit your own photo Watch the Center for Disease Control and Prevention’s 2013 Vital Signs report about HIV and join the “Lets Stop HIV Together” campaign And if you’re sharing your story on twitter, don’t forget to use #FacingAIDS There are over 3,500 PatientsLikeMe …

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World Parkinson’s Congress recap

Here at PatientsLikeMe, we always look forward to hopping on the road and visiting you, the members who generously share personal health journeys so everyone can learn to live better, together. Recently, Molly (she’s part of your Community Team), Brad and Jim (part of our Partner Marketing team) drove north to Montreal to attend the World Parkinson’s Congress with a few PatientsLikeMe members, and they wanted to take a quick second to report back on the experience. Check it out.   Off to MontrealThe World Parkinson’s Congress is designed to create a worldwide dialogue to expedite a treatment or cure for Parkinson’s Disease. It was amazing to see physicians and scientists, alongside health care professionals and nonprofits, connecting with patients and caregivers. It was a wonderful conference, and we were glad to be among the more than 3,300 participants who gathered in Montreal. We couldn’t have picked a better setting than Old Montreal to meet with four of our Parkinson’s community members – Aunti_J, Sap011235, Sunshine221, and Red Hat Queen. They all attended the conference and joined us for a wonderful dinner at Chez L’Epicier. The cobblestone streets, gorgeous historic buildings and an unseasonably warm evening set the scene for exquisite French cuisine …

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World Psoriasis Day – Global access to treatment

The international community is coming together today to raise awareness about psoriasis, and this year’s theme for World Psoriasis Day is ‘global access to treatment.’  The International Federation of Psoriasis Associations (IFPA) includes almost 50 member associations around world, including the National Psoriasis Foundation (NPF) right here in the U.S. They’re helping to spread the word about this chronic, autoimmune disease that affects more than 125 million people across the globe.[1] So what are the messages we’re all trying to get out there today?   Raise awareness: to let people with psoriasis know that they’re not alone Improve access to treatment: to move it up on the healthcare agenda Increasing understanding: educate people about the condition so that they can discuss it openly Building unity among the psoriasis community: to provide a platform for the patient voice[2] And here at PatientsLikeMe, the psoriasis community isn’t just raising awareness today; they’re doing it every day, all year round. Together, they’re learning to improve their quality of life and are paving the way to better care by sharing their experiences. Check out some of our member interviews that are up on the blog to get a glimpse of what living with psoriasis …

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