treatment

What’s in your “chemo bag”? Gearing up for lung cancer treatment

Cancer, Conditions, Patient Experiences / By

Chemotherapy is one of the most common treatments for lung cancer, so the community on PatientsLikeMe is chatting about what’s helpful to pack in a bag for chemo appointments (join PatientsLikeMe to take part in this lung cancer forum discussion). Everyone’s experiences, side effects and preferences are different, but here are some items that people who’ve had chemotherapy say […]

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Cannabis for PD treatment? Member Ian says it’s something to shout about

3 Comments / Conditions, Parkinson's Disease, Patient Experiences / By

Member Ian (Selfbuilder) blogs and vlogs about using cannabis products to treat his Parkinson’s disease symptoms, even though marijuana (including medical marijuana) is illegal and stigmatized where he lives in the U.K. Why is he speaking up? “I know that I would not be here now if it wasn’t for the relief provided by my

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Living with depression? Grab your mat: 5-minute yoga video with Jamie from PatientsLikeMe

Conditions, Depression, Patient Experiences / By

Studies have shown that practicing yoga can have positive effects on people with depression. So we tapped Jamie – a PatientsLikeMe research assistant who is also a certified yoga instructor – to show us some poses with mental health in mind. She put together a 5-minute, beginner-level flow that you can try at home. (As

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PatientsLikeMe and Cancer Treatment Centers of America Eastern team up to support survivors

Patient Experiences / By

Online Network Connects Patients, Offers Valuable Information and Tools CAMBRIDGE, Mass.—October 8, 2014—PatientsLikeMe and Cancer Treatment Centers of America (CTCA) at Eastern Regional Medical Center (Eastern) have joined forces to help ease patients’ transitions from cancer treatment to survivorship. The collaborative effort is designed to give patients undergoing or completing treatment direct access to a

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It’s the Season for Seasonal Affective Disorder

5 Comments / ALS, Chronic Fatigue Syndrome, Conditions, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Rare Diseases / By

Now that daylight savings time has ended, the days are shorter, and before you know it, it’s nightfall.  Has this affected your mood? Seasonal affective disorder (SAD), also known as seasonal depression, is a condition marked by a period of depression that occurs during the same season year after year.  In most cases, that season

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Structuring and Presenting the Patients’ Perspective at AMIA

13 Comments / ALS, Patient Experiences, Rare Diseases, Research / By

PatientsLikeMe members share health data on the site adding their own individual-level health experience to a repository of structured outcome data. The result? An unprecedented data set that informs medical conversation not only within the patient community but also with the larger scientific one. Earlier this fall, the venue for this conversation was the annual

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