4 posts tagged “Team Mid New England”

Listen Up! Here Comes The Patient Voice

Posted January 20th, 2011 by

In addition to hearing from you through our PatientsLikeMe newsletters, we sometimes get a chance to meet you in person to hear what you have to say about living with your condition.   Here are two videos highlighting interviews we conducted in 2010 with patients just like you.  In the first video, you’ll hear directly from members of our Parkinson’s Community, representing Team PatientsLikeMe at the 2010 Parkinson’s Unity Walk.  The second video is from the U.S. Transplant Games, where we interviewed YellowisJoy, a member of our Transplant Community and National Kidney Foundation’s Team Mid New England. Listen up – here comes the patient voice!

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PatientsLikeMe Gets into the Spirit of the Transplant Games

Posted August 5th, 2010 by

The spirit of Team Mid New England and the U.S. Transplant Games has infiltrated PatientsLikeMe!  We have just gotten back from an amazing trip to Madison, WI to watch Team Mid New England take to the athletic fields and to spread the word about our transplants community at PatientsLikeMe.

nkfne_smWe had the opportunity to sponsor Team Mid New England at the Games. Their blue shirts were easy to spot in the crowds of more than 7,000 people.  They wore our logo on their backs and traded our pins to spread the word about PatientsLikeMe.   On Saturday, we were able to gather them all for this fantastic team photo.   (See all of our photos from the weekend here).

Their energy and excitement was contagious.  Check out this video of Team Mid New England marching into the Coliseum during Opening Ceremonies.

At the Transplant Games, transplant recipients, living donors, and donor families all come together to celebrate life and honor their loved ones.  They say they come for sport, but really they come to share their stories, to meet one another, and to be a part of something greater than themselves.  It’s not dissimilar at PatientsLikeMe where transplant patients can find patients like them, share their story, learn from one another, and contribute to research.

Listen to YellowIsJoy, a current transplant community member talk about her experiences at the Games and on PatientsLikeMe.  You can feel her energy and her appreciation after receiving 3 life saving kidney transplants.   She is making the most of her life and stresses the importance of choosing new adventures every day.

The athletes, donor families, and friends that comprise Team Mid New England were gracious, energetic, and wonderful cheerleaders for PatientsLikeMe.  Congratulations to the team for bringing home more than 20 medals!  Let’s make it 40 in 2012!

PatientsLikeMe member mcotter