What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our April edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently, and if you are member who’s not opted in to the newsletter, sign up today.
What’s with sharing, anyways?
We’ve said it before, and we’ll say it again – we believe in the power of openness. By sharing your experiences, healthcare can be changed for the better. You can monitor your health status and make changes accordingly; you can find out you’re not alone; and both patients and organizations can do research based on your real-world experiences.
Every single patient on our site contributes to this change. When you add conditions, treatments and symptoms, you’re entering data that enables others to learn from you. The way we see it, when everyone shares, everyone benefits. To see how, check out these reports and dig deeper into the individual stories and data.
Things you can learn: How is this treatment working for other patients? What side effects have they reported? What are the most common dosages?
Things you can learn: How many other patients have experienced this symptom? What are they taking to treat or manage it? How severe is it for them?
Things you can learn: Who else has this disease? When did they experience their first symptom? What are some of the most common treatments?
Thanks for everything that you’ve shared – and continue to share – at PatientsLikeMe. Here’s to all that will be learned in 2012 as a result!
JOIN THE CONVERSATION
What’s happening in the forum? Check out some of these active threads below. Then jump in with your own questions and answers.
- Do you have a family history of MS? (MS Room)
- Scared of electroconvulsive therapy (ECT) (Mental Health Room)
- A roadmap for survival, peace and non-suffering (ALS Room)
- What are your results with muscle relaxants? (FM/CFS/ME Room)
- How to adjust to not working and lower income (Immune Room)
Need help with something on the site? Visit the PatientsLikeMe Site Help Room for answers from veteran members.
WHAT’S YOUR STORY?
Everyone has one. Tell yours in our new open text box (shown below). Anyone who follows you will then see your story in their feed. Stories are also important part of your health journal. Have you used the new journal feature? Adding a story (and photo!) about any of your conditions is a great way to get started.