SLE

Lupus and period problems, explained

Are you living with lupus (SLE) and experiencing problems with your monthly period? (Like, not getting it. Or having a really heavy, long period.) And have you ever wondered how lupus might play a role in this? Read on. What does the research show? Small studies have found that people with SLE are at greater risk of menstrual irregularities compared to the general/healthy population. The greatest type of irregularity appears to be sustained amenorrhoea (long-term absence of a period). Some people with SLE experience premature menopause. These factors may increase the risk of period irregularities: Being age 30+ Being on cyclophosphamide therapy (a chemotherapy drug) Taking immunosupressants (see a list of immunosupressive medications used to treat lupus) Young people (17 and under) with juvenile SLE also experience period irregularity and hormone abnormalities, research has shown. If you’re not getting your period (at any age), tell your doctor and ask how your lupus, treatments and other factors (such as menopause or any other health conditions you may have, like polycystic ovary syndrome) could be affecting “Aunt Flo.” If you are getting a heavy or prolonged period, it’s also important to talk with your doctor and get checked for anemia, which is already a common problem in people with lupus. Some women find …

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Join the Band: Raising Our Voices for Lupus Awareness

“I was diagnosed with lupus (SLE) at age 20 and had already lost about 60% of my kidney function. I had chemotherapy for nine months along with intense steroid therapy. I thankfully went into remission and have been since four months after my diagnosis. I still struggle with fatigue and kidney problems although I was transplanted in 2004. I will need another transplant most likely within the next year or two.” – Lupus patient, age 30 May is Lupus Awareness Month, and today, May 10, is World Lupus Day. Since PatientsLikeMe began welcoming all patients last month, we have quickly become home to more than 100 members with systemic lupus erythematosus (SLE), the most common form of this chronic autoimmune disorder that can affect any organ system in the body, including the heart, kidneys, lungs, joints and skin. Here are some quick facts about SLE gleaned from our new members. What is the gender breakdown? 96% of our new SLE members are female, and 4% are male, which fits with research showing a much greater prevalence of the disease in women. What are the top treatments? The most widely used prescription drugs reported by our SLE patients include , Hydroxychloroquine, Mycophenolate, …

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