8 posts tagged “rheumatoid arthritis”

Rheumatoid Awareness Day: 7 things you might not know about RA

Posted February 2nd, 2016 by

Today is Rheumatoid Awareness Day, and we’re spreading the word about the condition that affects over 9,000 PatientsLikeMe members. Rheumatoid disease can manifest in many different ways – fatigue, joint pain, stiffness and fever, to name a few — so it can be hard to understand the full scope of this condition. To show the world what living with #TheRealRD is like, the Rheumatoid Patient Foundation has shared these seven interesting facts:

1.Rheumatoid disease is not a type of arthritis; arthritis is just one symptom.

Rheumatoid disease (RD) is a systemic disease related to immune function that can affect any part of the body including the heart, lungs, eyes, skin or joints.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

2. Available treatments are not adequate for many people with moderate to severe rheumatoid disease.

About 1/3 of patients don’t respond to available biological disease modifying drugs. 

3. Rheumatoid disease is different in each person — and even in the same person over time.

Some people experience constant pain, and some have a series of “flares” and periods of lower disease activity. Symptoms can vary greatly from day to day

4. RA research is severely underfunded in the U.S.

RD is funded at about 1/12th the per-patient rate of similar diseases with comparable impact.

5. Rheumatoid disease is often an invisible illness.

Just because someone with RD looks good doesn’t mean he or she feels good.

6. Early, aggressive disease treatment has been shown to provide the best outcomes.

Those whose disease has been treated early have the best chance at achieving remission or low disease activity.

7. Remission is rare. Pain is not.

Remission rates have been reported as low as 6% in the average clinical environment. Most people with RD experience pain every day.

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Spreading the word for arthritis

Posted May 23rd, 2014 by

Lupus? Check. Fibromyalgia and ME/CFS? Check. ALS, cystic fibrosis, Huntington’s disease, mental health, schizophrenia, anxiety and depression? Check!

There’s been a ton of awareness going on in May, but there’s still one more theme to go – National Arthritis Awareness Month. This month, the Arthritis Foundation (AF) is encouraging us all to spread the word to everyone we know.

According to the American College of Rheumatology (ACR), arthritis is an umbrella term used to describe over 100 medical conditions and diseases, known as rheumatic diseases.1 The CDC estimates that 52.5 million adults in the United States have been diagnosed with some form of arthritis (including rheumatoid arthritis, gout, lupus, or fibromyalgia).2 Common symptoms generally include, but are not limited to:

  • Joint pain
  • Stiffness
  • Inflammation or swelling (most frequently in the hips, knees, hands and wrists)

If you’d like to learn more, the ACR has gathered a wealth of information on all the different kinds of arthritis. And if you’re not sure how to participate in Arthritis Awareness Month, here are a few places to start:

Finally, with over 6,000 members, the rheumatoid arthritis community is the largest group of arthritis members on PatientsLikeMe, but many more are living with osteoarthritis (3,994) psoriatic arthritis (1,278) and other forms of the inflammatory condition. They’re donating their personal health data to help others learn about life with arthritis, and they’re always sharing in the forum about symptoms, treatments, advice and more.


1 https://www.rheumatology.org/about/arthritismonth.asp

2 http://www.cdc.gov/arthritis/data_statistics/arthritis_related_stats.htm