Research

A patient’s perspective: member Gary reports back from the FDA public meeting on Parkinson’s disease

Back in September, Sally Okun, Vice President of Advocacy, Policy and Patient Safety, and community moderator Molly Cotter, attended the FDA public meeting on Parkinson’s disease (PD) along with PatientsLikeMe member Gary (tupelo). We posted some interesting developments from the meeting in the forum, but we also caught up with Gary for his perspective on …

A patient’s perspective: member Gary reports back from the FDA public meeting on Parkinson’s disease Read More »

Throwback Thursday: Diabetes and stress

Just about two years ago, nearly 600 members of the PatientsLikeMe community completed a survey called the Diabetes Distress Scale (DDS), a 17-item questionnaire which measures the amount and types of problems diabetes can cause in a person’s life. And today, we’re throwing it back to the summary of the results. Here’s what Dr. William Polonsky, …

Throwback Thursday: Diabetes and stress Read More »

ORE Researcher Series: Dr. Larry Alphs Talks PROs and Depression

Dr. Larry Alphs, the Therapeutic Area Leader in Psychiatry for Janssen Pharmaceuticals, shared about his research as part of PatientsLikeMe’s ORE Researcher Series. You’ve already listened to Dr. Tamara Kear and the McMaster University researchers – click below to watch Dr. Alphs speak about a new drug that could eventually treat suicidal thoughts.     …

ORE Researcher Series: Dr. Larry Alphs Talks PROs and Depression Read More »

ORE Researcher Series: McMaster University

Last month, you met ORE researcher Tamara Kear, PhD., R.N., CNS, CNN, and you listened to her talk about her research on hypertension, one of the factors that can lead to a person developing kidney disease. Today, we’re introducing McMaster University Professor Gordon Guyatt and students Melody Ren and Reza Mirzaie. The question they are asking is …

ORE Researcher Series: McMaster University Read More »

ORE Researcher Series: Tamara Kear is listening to kidney patients

Over the next few months, you’ll meet a few Open Research Exchange (ORE) researchers, and first up is Tamara Kear, PhD., R.N., CNS, CNN. She has over 20 years’ practice as a nurse caring for patients with kidney disease. Her research is focused on hypertension, one of the factors that can lead to a person …

ORE Researcher Series: Tamara Kear is listening to kidney patients Read More »

Sally Okun explains the new research collaboration with the FDA

Yesterday, we announced a new research collaboration with the U.S. Food and Drug Administration (FDA) that will explore how patient-reported data can lead to new insights about drug safety. It’s the first time the FDA will analyze patient-generated data for pharmacovigilence (aka drug safety). But we’re no strangers to drug safety. Check out some of …

Sally Okun explains the new research collaboration with the FDA Read More »

PatientsLikeMe and the FDA Sign Research Collaboration Agreement

WASHINGTON D.C., June 15, 2015—PatientsLikeMe and the U.S. Food and Drug Administration (FDA) have signed a research collaboration agreement to determine how patient-reported data can give new insights into drug safety. Under the collaboration, PatientsLikeMe and the FDA will systematically explore the potential of patient-generated data to inform regulatory review activities related to risk assessment …

PatientsLikeMe and the FDA Sign Research Collaboration Agreement Read More »

PatientsLikeMe Appoints Jason Johnson Executive Vice President and Head of R&D

CAMBRIDGE, MA, May 18, 2015—PatientsLikeMe today announced it has appointed Jason Johnson, PhD, as Executive Vice President and head of research and development (R&D). Johnson leads the company’s research, data science, and informatics teams, which focus on analyzing and merging patient-reported and other data types to develop models of disease progression and generate new insights …

PatientsLikeMe Appoints Jason Johnson Executive Vice President and Head of R&D Read More »

Scroll to Top