2 posts tagged “Prednisone”

What Do You Know About Multiple Sclerosis?

Posted March 1st, 2012 by

The Multiple Sclerosis Foundation Has Been Sponsoring MS Education and Awareness Month Since 2003

March is National MS Education and Awareness Month (NMEAM), an initiative of the Multiple Sclerosis Foundation (MSF) to raise awareness for this chronic neurological disease affecting the brain, spinal cord and optic nerves.

This year’s theme is “At Your Best with MS,” encouraging the more than 2.5 million people with MS worldwide to seek the best quality of life possible.  This means different things to different people as MS varies widely in severity, with approximately 15% of those diagnosed becoming severely disabled.  It could include adhering to a treatment regimen, eating healthy, keeping fit, developing a support network and/or maintaining good emotional health.

It could also refer to nurturing hobbies and interests.  That’s why the MSF has launched the “Show Us Your Best” contest, which calls for creative submissions (such as poems, essays, photo collages, videos, songs and more) demonstrating how people are raising awareness of MS.  The deadline for entry is March 31st, and the grand prize winner will win a cruise for two on MSF’s 2013 “Cruise for a Cause” to Alaska.

A Snapshot of the MS Community at PatientsLikeMe - and Its Age/Gender Breakdowns

With 26,000+ members, the MS community at PatientsLikeMe is one of our largest.  Approximately 80% of the MS community is female (reflecting the fact that MS is at least 2-3 times more common in women than men), and slightly more than half have the relapsing-remitting form of the disease (RRMS).  We also have 1,400+ patients with primary progressive MS (PPMS), 2,200+ with secondary progressive MS (SPMS) and 580+ with progressive relapsing MS (PRMS).

Some of the most commonly reported MS symptoms in our community include bladder problems, brain fog, excessive daytime sleepiness and stiffness/spasticity.  What are our members taking for these issues – as well as for MS itself?  From disease-modifying treatments (DMTs) like Copaxone, Avonex and Tysabri to steroids like Prednisone to symptom-specific medications like Baclofen, our members have submitted hundreds of evaluations for nearly all available treatment options.  (Click on each drug name above to find out how they rate the effectiveness, side effects, cost and more.)

A Snapshot of Some of the Most Commonly Reported MS Symptoms - and Their Severity - at PatientsLikeMe

Our members are not only sharing their experiences with treatments and symptoms on their PatientsLikeMe profiles – they’re also chatting about them.  A lot.  To date, the MS forum room has over 786,000 posts! Some of the most frequently used forum tags are CCSVI (“The Liberation Procedure”), Low Dose Naltexone (LDN), SSDI (Disability Insurance), Fatigue, “LimboLand” and Research.  (Click on each category to see what patients are saying about the topic.)

Piqued by all the knowledge found in our MS community?  This is just the the tip of the iceberg – and the kickoff of our MS coverage this month.  Stay tuned for more about what our MS members are sharing and learning during MS Awareness Week (March 10-17th), organized by the National Multiple Sclerosis Society (NMSS).


Are Your Lungs Trying to Tell You Something?

Posted November 28th, 2011 by

Chronic coughing and wheezing.  Frequent shortness of breath.  Struggling for air.  These are some of the symptoms of chronic obstructive pulmonary disease (COPD), which affects 24 million Americans (or approximately one in five adults over the age of 45).  As many as half of them don’t realize they have COPD, however, as many people mistake their slowly worsening symptoms as normal aging or a lack of fitness.

November is National COPD Awareness Month, and the COPD Learn More Breathe Better® campaign, sponsored by the National Heart, Lung and Blood Institute, aims to raise awareness about this under-diagnosed condition.  With a growing prevalence in the US, COPD – which includes emphysema and chronic bronchitis – is now the third leading cause of death in the US as well as a significant cause of long-term disability.

While COPD can have environmental or genetic risk factors that lead to its development in non-smokers, the disease most often occurs in people age 40 and over with a history of smoking (either current or former smokers).  Smoking is the most common cause of COPD, accounting for as many as 9 out of 10 COPD-related deaths.  Thus, quitting smoking now can reduce your risk.  (Worried about your ability to quit?  Read our recent Great American Smokeout blog for motivation, resources and support.)

A Snapshot of the COPD Community at PatientsLikeMe

If you’ve been diagnosed with COPD, connecting with other patients like you can help you learn how to live better with the condition.  331 patients report COPD at PatientsLikeMe, with 44 listing it as their primary condition.  Some of the common treatments they report include Budesonide, Fluticasone, Prednisone and Oxygen Therapy.  (Click on each name to see the treatment evaluations submitted by our patients, who share their experiences with effectiveness, side effects, cost and more.)

Not sure if your breathing problems might be COPD?  See your doctor for a simple breathing test known as spirometry.  The earlier you get diagnosed and treated, the sooner you can begin to breathe a little easier.