PatientsLikeMeInMotion

PatientsLikeMeInMotion at 2010 Parkinson’s Unity Walk

4 Comments / Parkinson's Disease / By

Last weekend, we headed to New York City in great anticipation of the 2010 Parkinson’s Unity Walk held each year in Central Park.  We were excited once again to meet members of Team PatientsLikeMe, a group of patients who travel from across the country to meet one another and work tirelessly to raise money each year for the walk.  Team PatientsLikeMe raised $13,000 and came in as #13 of the Top 25 fundraising teams for the 2010 Unity Walk. This year, some of the team members were reuniting at the walk after meeting at previous Unity Walks; others were meeting for the very first time.  The experience was inspiring and energizing.  What we were able to see first-hand is how consistently and plentifully patients share – both online and off.  In addition to sharing their health data and lives on PatientsLikeMe, we see how they also share their families, their stories, their dreams of a Parkinson’s-free future, and, at this unforgettable day in Central Park, their unwavering commitment to helping patients just like them.  Representative of the thousands of patients in our communities, members of Team PatientsLikeMe are full of hope and inspiration and plenty of energy.  We chased any …

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Tell The World: Parkinson’s Patients are “In Motion”

Parkinson's Disease / By

The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country.  It’s exciting to see our members are as active offline as they are online about raising awareness of their condition.  The PatientsLikeMeInMotion program gives members the chance to show their PatientsLikeMe spirit, meet and connect with new people about their condition, and, as we like to say, Tell The World about their experiences.   It also allows PatientsLikeMe to give back to our 3-star members for all the sharing that they do. Since April is Parkinson’s Disease Awareness month, we wanted to highlight one particular PatientsLikeMeinMotion team from our Parkinson’s community.   This  “Team PatientsLikeMe” has been together for 3 years and will once again join hands (and feet) for the Parkinson’s Unity Walk this Saturday (April 24th in New York City).  As we continue to get pumped up for this year’s Unity Walk, check out this great video from past events and hear community members “Tell The World” about their experiences with Parkinson’s Disease and PatientsLikeMe.

Tell the World: Parkinson’s Patients Unite Online and Off

1 Comment / Parkinson's Disease, Patient Experiences / By

At PatientsLikeMe, thousands of patients are uniting online to share health data, find patients like them, and to learn from one another.  Since this is Parkinson’s Awareness Month, we wanted to highlight an off-line event that also represents unity – aptly named the Unity Walk.  The annual event, which takes place next weekend in New York City, brings together more than 10,000 Parkinson’s patients and their families to educate the community and celebrate the great strides made in funding Parkinson’s research. As in the past, our very own group of patients will be walking at the 16th Annual Unity Walk in Central Park.  Led by pokie too, the 30+ person Team PatientsLikeMe will be gathering in New York to meet one another and to raise money and awareness for Parkinson’s research.  As part of the PatientsLikeMeInMotion program, we are happy to once again sponsor this year’s team. Want to learn more about the Unity Walk?  Listen in to our latest installment of PatientsLikeMeOnCall podcast series where Aaron Fleishman gets the scoop from Unity Walk Executive Director, Carol Walton.  They discuss walk details, Team PatientsLikeMe, and what the walk has been able to accomplish for Parkinson’s patients. Can’t get to New …

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PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients

3 Comments / Organ Transplants / By

Recognized by Fast Company as two of the 50 Most Innovative Companies in the World, PatientsLikeMe and Novartis have united to launch a new community for organ transplant recipients (including kidney, lung, heart and liver).  In the news release announcement, PatientsLikeMe President Ben Heywood and Novartis CEO Joe Jimenez discuss what impact this community could have for organ recipients.  Ben also discusses the community in more detail as part of our PatientsLikeMeOnCallTM podcast series.  Listen in to learn more about our new programs PatientsLikeMeMentorsTM and PatientsLikeMeInMotionTM.

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