patient quality of life

What products help people live better with Parkinson’s disease? A room-by-room round-up

Over the years, PatientsLikeMe members living with Parkinson’s disease have discussed a lot of products and ideas for living better with PD. From kitchen knives and eating utensils to shoe horns and shoelaces, we’ve compiled a list of tools you’ve talked about for (almost) every room in the house and many different aspects of life. Check it out, and join the community to chime in with your own favorites. In the kitchen A “rocker knife,” also known as an “ulu” or a “mezzaluna” knife “works great for chopping/slicing veggies, fruits, cheeses, etc.” and a “large-blade pizza cutter is great for cutting pancakes/waffles very quickly,” one member says With a food chopper, like those sold by The Pampered Chef, “I can chop onions, peppers, garlic in no time,” another member says Others have mentioned weighted utensils and kitchen utensils specifically designed for people with PD Multiple members have also discussed drinking cups with lids and straws (for both cold and hot drinks) to help prevent spills and gagging/choking In the bathroom Biotene toothpaste or mouthwash “helps with dry mouth caused by meds” A raised toilet seat and a stool at the bathroom counter can be helpful, as well as a walk-in shower, if possible, some …

What products help people live better with Parkinson’s disease? A room-by-room round-up Read More »

PatientsLikeMe – Out & About and OnCall

The PatientsLikeMe team has been traveling around the globe recently talking about the power of real-world patient data in changing healthcare.  You may have heard about our executives at industry conferences, government hearings, or even on TV.  Highlights below. Last month, PatientsLikeMe Co-founder and President Ben Heywood was on Fox Business News talking about how industry is engaging directly with patients and tuning into the “unvarnished truth” patients are sharing about their real-world disease experiences. Watch the latest business video at <a href=”http://video.foxbusiness.com/” mce_href=”http://video.foxbusiness.com/”>video.foxbusiness.com</a> Earlier in March, we launched our PatientsLikeMeOnCallTM podcast series to bring to you our leaders’ perspectives on topics that impact you, the patient, and the healthcare industry as a whole.  We kicked off the series with Ben’s interview regarding Fast Company recognition.  You can check out that one and the rest of our podcasts on iTunes or click on the links below to start listening to a specific interview.  As podcast host Aaron Fleishman says, “thanks for stopping by and listening and we’ll talk to you next time.” Listen | Ben Heywood (Co-founder, President) answers questions about the launch of our new organ transplants community and our collaboration with Novartis Listen | David S. Williams III …

PatientsLikeMe – Out & About and OnCall Read More »

Scroll to Top