4 posts tagged “Patient Power”

Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life

Posted July 23rd, 2012 by

“The benefit of sharing on PatientsLikeMe is the support.  For me, it doesn’t matter what I’m going through, there are people there that understand.  They’re not judgmental.  They get it.  They’re there too.  I get lots of emotional moral support.”

Multiple Sclerosis Patient Marcia

Back in June, we shared with you a video interview with PatientsLikeMe member Lissa that was conducted by our partner Patient Power.  Today, we’re pleased to present a second Patient Power interview with another member, Marcia Hirst.  A wife and mother of 11 children, Marcia, 52, has been living with multiple sclerosis (MS) since she was a young girl – although she didn’t know it at the time.

Check out her moving interview below to find out about the lifelong adjustments she’s made due to MS and learn why “the puzzle pieces are coming together” now that she’s discovered a community of 28,000+ MS patients at PatientsLikeMe.

Marcia Hirst: Don’t Let Multiple Sclerosis Take The Joy Out of Your Life from Patient Power® on Vimeo.

Powered by Patient Power

Enjoying these Patient Power interviews?  Stay tuned for others as the series continues.


Living with Psoriasis: PatientsLikeMe Member Lissa Featured on Patient Power

Posted June 4th, 2012 by

“I don’t really know too many people around here with psoriasis.   It was hard to relate with somebody.  My family, my friends, my husband, they’re great support, but they can only see what I’m going through, they can’t go through it the way I do.  It’s really important to be able to connect with people who truly understand what you’re going through.”

Psoriasis Patient Lissa

In March, we introduced you to Lissa, a psoriasis patient who had recently started blogging about life with this chronic skin condition.  At that time, she had begun UVB photo therapy treatment for her psoriasis.

Now, several months later, you can see how Lissa is doing after completing her 51st UVB photo therapy session – and how PatientsLikeMe continues to play a role in her wellbeing – in a Skype video interview with our partner Patient Power, a site dedicated to connecting you with the experts on your condition.  That means doctors and patients.

Lissa Conger: Managing Psoriasis and Harnessing the Power of Patient Communities from Patient Power® on Vimeo.

Powered by Patient Power

Check out Lissa’s engaging interview with Patient Power founder Andrew Shorr, a leukemia survivor, above.  And stay tuned for more Patient Power videos featuring PatientsLikeMe members – including patients with multiple sclerosis (MS) and cancer.