patient guest post

Surviving Multiple Sclerosis (MS)

It’s Men’s Health Week, and we’re featuring the perspectives of – you guessed it – men.  Following tiredoftired’s guest post about depression on Monday, we are pleased to present this poignant essay by longtime PatientsLikeMe member and mentor Rick N, who has lived with multiple sclerosis (MS) for 23 years. I am a 58-year-old man with MS.  It has often been a long, bewildering, and lonely journey, which has taken me to the valleys of sorrow and to the pinnacles of success. MS is not a death sentence, as some would say. Rather, it is an opportunity to inspire and show to the world that an incurable disease can be transformed into a blessing, an enduring promise that life can go on. MS is a slow and debilitating disease. It creates new challenges daily. Some days I forget that I even have the illness and can do most tasks and chores. The next day may find me with a trembling heart begging for mercy. Sometimes I think that the worst of MS is the unknown. I am currently diagnosed with primary progressive MS (PPMS). I awake with fears and anxieties. What is MS going to give me today? It is …

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Mike Wallace, Depression and Me

In honor of Men’s Health Week, we are pleased to present a guest post by PatientsLikeMe member tiredoftired, a young man who has been living with major depressive disorder since 2007.  Don’t miss this moving essay about how Mike Wallace’s passing earlier this year impacted and inspired him. As I was driving to therapy on an April afternoon, I heard a news report that Mike Wallace, an original host of the television show 60 Minutes, had passed away.  I was intrigued when the short segment highlighted Wallace’s accomplishments in his battle with depression.  I was only somewhat familiar with the show, but it was obvious from the report that he had a decorated career as a journalist and his professional accomplishments could have easily taken the full slot.  Having struggled with depression myself, I felt compelled to investigate his life further. For those of you who are unfamiliar with his work as I was, Wallace was a pioneer of the newsmagazine format, which shaped journalistic television.  He was a pit bull of a correspondent; with his aggressively confrontational approach, he posed direct questions that others were too afraid to ask, often leaving the subject shaken.  Wallace interviewed some of the …

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Someone Like Me

We are pleased to present a guest post by PatientsLikeMe member Jasmine (Jazz1982), who was diagnosed with multiple sclerosis (MS) in her mid-twenties.  Don’t miss this beautiful essay about the commonalities between all patients who have lost functionality – regardless of how different their conditions might seem. I recently met someone that happened to be just like me but not in the way that I expected. I’m currently doing my master’s thesis and was interviewing an occupational therapist who had had a stroke herself. Her name is Lena, she’s 55 years old and not only has she had one stroke, but four of them. You might think this had made her “disabled,” but as with a lot of people I meet that have a chronic illness, it has only enabled her even further and made her more determined. The interview was supposed to last a maximum of 30 minutes but lasted three hours. We just couldn’t stop talking. At this point I think I should introduce myself. My name is Jasmine, I’m 29 years old and I have multiple sclerosis (MS). To a layman’s ears, this would mean that on a random basis I lose one or more functionalities, and with medication, …

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