2 posts tagged “Parkinson’s forum”

Fall feast: 3 ‘Parkinson’s-friendly’ recipes + cooking tips

Posted October 30th, 2018 by

Are you living with Parkinson’s disease (PD) and looking for some dishes for Thanksgiving or another fall feast? Or just to boost your appetite? Our friends at Community Servings — a Boston-area nutrition and meal delivery organization for people with health conditions — handpicked three tasty recipes with a healthy balance of nutrients for people with PD. Plus, they’re sharing some quick pointers to help you keep on cooking with your condition.

3 awesome autumn recipes

“These are all high in fiber, have healthy fat, a moderate amount of protein, and are pretty easy to prepare,” says Alison Schlisser, a registered dietician and manager of Nutrition Services at Community Servings.

Butternut Squash & Black Bean Salad – This earthy salad features a flavorful combo of beans, squash, feta cheese, lemon juice and cilantro (with a dash of pumpkin pie spice, to boot). Serve it warm or at room temperature as a side dish or main course.

Mediterranean Sweet Potatoes – The stars of this vegan dish are roasted sweet potatoes and crispy chickpeas (spiced with cumin, cinnamon and paprika), plus a creamy tahini (sesame) sauce. This could add a nice kick to your Thanksgiving menu!

Delicata Squash & Lentil Soup – Delicatas are the long, cream-colored squash with dark green stripes. Their mild and slightly sweet flavor pairs well with hearty lentils and kale, plus a host of spices that scream “fall” in this soup.

Join PatientsLikeMe or log in to check out some other Thanksgiving recipes the PD community swapped in the forum.

Just keep in mind the timing of your meals and medications (for example, avoid eating too much protein close to when you take carbidopa/levodopa or Sinemet—see chapter 2 of the Parkinson’s Foundation’s Nutrition Matters booklet for more information). Talk with your doctor or a dietician to learn more.

Pointers for cooking with PD

Alison also passed along these pointers that could help you in the kitchen:

  • Buy pre-cut fresh, frozen or canned items to decrease preparation time. Frozen fruits and vegetables are just as healthy as their fresh counterparts. If choosing canned items, make sure to avoid added sugar and sodium (salt)!
  • Invest in some adaptive equipment for your kitchen. Angled measuring cups with well-gripped handles can be read from above, which means not having to lift the cup or having to bend over to read the fill level. Angled knives make one-handed cutting much simpler. Non-slip mats are very useful to help secure plates, bowls, and cutting boards in place when doing food prep.

The Michael J. Fox Foundation also rounded up 5 Ways to Make Cooking Easier with PD, such as sitting on a counter-height stool for much of your meal prep and using cut-resistant gloves, and a rice cooker (or slow cooker), whenever possible.

Do you have any favorite fall recipes or cooking tips to share? Sign up for PatientsLikeMe and swap ideas here with the PD community!


Observing Parkinson’s Awareness Month

Posted April 2nd, 2012 by

Since 2010, April has been designated as Parkinson’s Awareness Month by the US Senate.  The goal is to shine a spotlight on the national impact of Parkinson’s disease (PD), which affects more than one million Americans.  A progressive disorder of the nervous system, PD is often marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements and a mask-like facial expression.

The 2011 Parkinson's Unity Walk Had Nearly 10,000 Participants and Raised Over $1.5 Million for Parkinson's Research

Parkinson’s activists been coming together for the last 17 years for the Parkinson’s Unity Walk, held annually in New York City’s Central Park at the end of April.  (The 2012 event takes place on Saturday April 28th.)  Now, with Parkinson’s Awareness Month surrounding it, there is a month-long effort to raise awareness and research funds.  One of the driving reasons is that PD complications are the 14th leading cause of death in the US.

PD was one of the flagship conditions at PatientsLikeMe, and today we have more than 6,100 patients who report the disease.  What are they doing to cope?  Some of the most commonly reported treatments include prescription drugs such as Carbidopa-Levodopa (Sinemet), Ropinirole (Requip), and Rasagiline (Azilect); procedures such as Deep Brain Stimulation (DBS) and acupuncture; and supplements such as CoEnzyme Q10.  Click on each treatment to see how our patients rate the effectiveness, side effects, cost and more.

A Snapshot of the Parkinson's Community at PatientsLikeMe

We also have an active Parkinson’s Disease Room in our forum, where more than 7,000 patients are discussing 12,000+ topics.  To date, we’ve logged more than 100,000 forum posts about PD!  What are patients talking about?  Some recent threads include:

  • Do you have a caring doctor?
  • Dealing with sadness and stress
  • Knitting:  therapeutic or tortuous?
  • The neglected pain of Parkinson’s
  • Resigned from my job today

For more insight into living with PD, stay tuned for our interview later this week with PatientsLikeMe member Jim Atwell, author of Wobbling Home:  A Spiritual Walk with Parkinson’s.