2 posts tagged “organ transplant patients”

PatientsLikeMe Gets into the Spirit of the Transplant Games

Posted August 5th, 2010 by

The spirit of Team Mid New England and the U.S. Transplant Games has infiltrated PatientsLikeMe!  We have just gotten back from an amazing trip to Madison, WI to watch Team Mid New England take to the athletic fields and to spread the word about our transplants community at PatientsLikeMe.

nkfne_smWe had the opportunity to sponsor Team Mid New England at the Games. Their blue shirts were easy to spot in the crowds of more than 7,000 people.  They wore our logo on their backs and traded our pins to spread the word about PatientsLikeMe.   On Saturday, we were able to gather them all for this fantastic team photo.   (See all of our photos from the weekend here).

Their energy and excitement was contagious.  Check out this video of Team Mid New England marching into the Coliseum during Opening Ceremonies.

At the Transplant Games, transplant recipients, living donors, and donor families all come together to celebrate life and honor their loved ones.  They say they come for sport, but really they come to share their stories, to meet one another, and to be a part of something greater than themselves.  It’s not dissimilar at PatientsLikeMe where transplant patients can find patients like them, share their story, learn from one another, and contribute to research.

Listen to YellowIsJoy, a current transplant community member talk about her experiences at the Games and on PatientsLikeMe.  You can feel her energy and her appreciation after receiving 3 life saving kidney transplants.   She is making the most of her life and stresses the importance of choosing new adventures every day.

The athletes, donor families, and friends that comprise Team Mid New England were gracious, energetic, and wonderful cheerleaders for PatientsLikeMe.  Congratulations to the team for bringing home more than 20 medals!  Let’s make it 40 in 2012!

PatientsLikeMe member mcotter

Capture and Share Your Transplant Journey

Posted March 19th, 2010 by

Following up on last week’s launch of the PatientsLikeMe Transplants Community, we present you with the next in our podcast series – PatientsLikeMe OnCallTM:  Transplant Community Walk-Through.  Podcast host, Aaron Fleishman, interviews Product Manager Maureen Oakes about new and upgraded functionality rolled out with the launch of this transplants community.

Topics covered in this podcast include:

  • Patient Profile: get a glimpse at how transplant recipients capture their experiences on their profile by providing a transplant history, taking a quality of life survey, and entering lab and test data
  • New Timeline Feature: patients in the transplants community can record and share every step of their transplantation journey with this new timeline feature
  • Upgrades to the Patients Tab: a change made across all the PatientsLikeMe communities, members will find searching for patients like you much clearer and easier to do with these new upgrades to the Patients tab

Stay tuned for more from the PatientsLikeMe OnCallTM podcast series, and don’t forget to spread the word about the new transplant community.