2 posts tagged “new profile charts”

Share and Compare: What Have You Learned with InstantMe?

Posted March 9th, 2011 by

How are you feeling today – honestly?

instantme-choices

In December, PatientsLikeMe launched a new feature called InstantMe. It’s designed to allow you to chart how you are feeling day in and day out. Is today a bad day? Record it on InstantMe (found on your profile), and if you’d like, add a note explaining what’s going on.

With InstantMe, patients like you are able to learn about your day-to-day fluctuations in response to your symptoms, treatments and many other things, such as family stress or work issues. More than 13,000 of you have been using InstantMe for a little over three months.

So, what have you gleaned from it so far? Here’s a sampling of the feedback you’ve shared.

  • I really like Instant Me because I see that I am feeling better than I thought and noticed the weather really has an effect on me.
  • I’m more aware of the changes that have occurred since I had the CCSVI procedure. And using this new InstantMe has let me chart this almost on a daily basis.
  • I can record when and why I feel the way I do, like if I am trying a new supplement and such, or forgot to take my vitamins, or if my teen was home all week.
  • My neuro asked that I keep a diary of my issues and when PatientsLikeMe started InstantMe, that was a perfect format. This allowed me to track day to day changes in pain levels and V/S steroid input.
  • One thing I have noticed is that that feeling of being more run down at the end of the week is NOT my imagination. I also am curious to see what times of day are my “best” times to do mental activities.

What about you? We’d love to hear what you’ve learned from answering the question “How are you feeling?” on a regular basis.

PatientsLikeMe member emorgan


Exciting New ALS Progression Chart Upgrades

Posted January 20th, 2010 by

Today, we’re announcing an exciting major upgrade to our PatientsLikeMe platform – new profile charts with significant functional improvements.

We started PatientsLikeMe with the idea that visualizing your condition and treatment history over time is a powerful way to understand the impact of your treatment choices and tell the story of your progress to other patients like you.  So, we designed the website with the profile charts as the centerpiece around which the rest of the site activity is organized.

Exciting New ALS Progression Chart Upgrades at PatientsLikeMe

The new profile charts, which we’re rolling out today in the ALS community, are designed to help you understand your own profile better and tell your story more effectively. Ultimately, these charts will help you answer the question: “Given my status, what is the best outcome I can expect to achieve, and how do I get there?”

Here are some of the functionality improvements the members of our ALS community will notice:

  • Charting of treatment side effects. If you have reported side effects for a treatment (by filling out a treatment evaluation), you can now see them plotted on your profile underneath that treatment.treatment_side_effects
  • Charting of treatments taken for a symptom. If you have reported that you are taking a treatment for a particular symptom (by filling out the information in the treatment’s “purpose” section), you will see those treatments on your profile plotted underneath the symptom.treatments_for_a_symptom
  • Customizable timescale. It is now easy to see your history over various time spans from 1 month all the way up to the entire history, all at the click of a button.
    timescale_switcher
  • General visualization clean-up. We made some design improvements to make the charts easier to read, such as the visualization of the treatment dosage changes.

What our members will notice more than any of these improvements is that when you interact with the chart (by zooming, opening/closing charts or side-effects, etc.), the interaction is smooth and instantaneous.  This is because we completely overhauled the technical platform we are using to display the charts. We think that this new technology will make it quicker and easier for us to give you even more chart innovations in the future.

(For the technically inclined, the old charts were static images with Ajax mouseovers and timeswitchers, and the new charts use Flash technology.  Note: All members must have the necessary Flash component installed to display the charts and, in some cases, a Flash installation upgrade may be necessary).

As with all our pilot programs, we will be testing it out to make sure it’s working well for our members. Once everything is working smoothly, we will roll the charts out to our other communities.  But even more exciting, we want to continue to add charting innovations, such as the ability to re-order treatments by purpose (treat my condition, treat a symptom, etc.) or overlay the profiles of other patients just like you.

These new charts are the first of many new exciting upgrades to the PatientsLikeMe platform this year. We add these enhancements because we want to stay true to our core values: putting “Patients First” and making changes that “Create Wow!” We hope you agree.

Do you have feedback on the charts or how we’re doing in general? Please let us know!

 

PatientsLikeMe member jcole