National Epilepsy Awareness Month

What’s your epilepsy story?

That’s what everyone’s asking this November during National Epilepsy Awareness Month.  If you’ve been diagnosed, or know someone living with epilepsy, put on your brightest purple clothes and start raising awareness for this neurological condition. What are three things you need to know about epilepsy? 1 It’s a condition that affects the nervous system and causes seizures A seizure is a disruption of the electrical signals between brain cells (neurons) People are diagnosed with epilepsy after they experience two or more unexplained seizures separated by at least 24 hours Epilepsy affects about 50 million people around the world, including over 2 million in the United States alone.2 3 Although there is no cure for epilepsy, seizures can be managed and suppressed through medications, non-medication treatments such as vagus nerve stimulation, or surgery.4 5 6 To help raise awareness this month, the Epilepsy Foundation of America (EFA) has organized a series of short online videos that feature people from all over the U.S. sharing their experiences with epilepsy. Watch one of them below and check out the rest on the EFA’s “Story Days” campaign page.   Los Angeles Don’t forget to check out Letitia’s video, too – she’s a PatientsLikeMe member who …

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Raising awareness for epilepsy in many different ways

November is often seen as a month of transition – autumn gives way to winter, the holiday season fires up, and our short sleeves disappear for warm coats and sweaters. And as many of you know, November is also National Epilepsy Awareness Month. Many different organizations focus on epilepsy throughout the year, but this November, we’re all transitioning into high gear to raise even more awareness about epilepsy. The straight facts: Epilepsy currently affects 2.2 million people in the United States (and more than 60 million people worldwide) The condition is the fourth most common neurological condition in the United States More than 570,000 adults age 65 or older are living with epilepsy, along with 300,000 children under the age of 15 in the United States1 Thanksgiving isn’t the only important day in November This whole month is dedicated to sharing experiences and learning about epilepsy, but on November 7th, the Epilepsy Foundation is teaming up with Disneyland to host the first annual “Epilepsy Awareness Day at Disneyland Resort” in southern California. Children and parents living with epilepsy will get a chance to enjoy a fun-filled, stress-free day at Disneyland, and a portion of all tickets sold will be donated …

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Join the “Now I Know” Video Campaign for National Epilepsy Awareness Month

“Today [my son] Jake is living a wonderful life, an extraordinary life, and now I know that’s possible.  When Jake was first diagnosed, we didn’t know that.  Now I know that…and that we’re not alone.” – Actor Greg Grunberg, father of a 16-year-old with epilepsy When it comes to epilepsy, what do you know now that you wish you knew sooner? That’s the question the Epilepsy Foundation is asking epilepsy patients and their families to ponder during National Epilepsy Awareness Month, which takes place every November. Share your struggles and successes in a video submission to the “Now I Know” campaign. Visitors to Epilepsy Foundation’s Facebook page will then have to the opportunity to vote on their favorites and share top videos with their social networks.  Ultimately, the top vote getters in each of four regions will win iPads and other prizes. Affecting more than two million Americans, epilepsy is defined by the Epilepsy Foundation as “a medical condition that produces seizures affecting a variety of mental and physical functions.”  When a person has two or more unprovoked seizures – brief, strong surges of electrical activity affecting part or all of the brain that last anywhere from a few seconds …

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