2 posts tagged “MS patient”

MS & Vertigo: How do you cope?

Posted August 28th, 2018 by

Ever have a sudden loss of balance or feel like the room is spinning? You’re not alone —it’s a popular topic in the forum, and vertigo might be to blame. See what other members have shared about their experience with this symptom and how they cope.

What’s vertigo?

Vertigo is the feeling that you, or the space around you, is moving or spinning. It could be barely noticeable or so severe that you find it difficult to keep your balance and do everyday tasks.

It can happen suddenly and last anywhere from a few seconds to much longer. With severe vertigo, your symptoms may be constant and last for several days, making normal life difficult.

Vertigo-related symptoms may include:

  • loss of balance
  • nausea or vomiting
  • dizziness

What are PatientsLikeMe members saying about vertigo?

“I was bumping into walls and chairs, was uncoordinated, and ‘dizzy’ when I laid down, however, the little dizzy feeling was so pronounced the entire room was spinning with such force I had to hold on to the ground ( palms down) to make sure I wasn’t actually moving.”

“I am spinning counter-clockwise… with a funky little reflective silver spot in my field of vision…”

“The sickest I’ve ever been. Can’t even move your head without throwing up. All I could do was lay very still with my eyes closed and with a wastebasket by the side of the bed.”

How are members coping? Check out these suggestions:

  • Ginger: Candy, tea, ginger ale
  • Antivert: Used to manage vertigo and prevent and treat symptoms of motion sickness
  • Transderm Scop: A small patch you put behind your ear for motion sickness
  • Stugeron Forte: An anti-histamine drug, is used to treat balance disorders like vertigo
  • Low doses of ativan or valium
  • Dramamine
  • Vestibular therapy: an exercise-based program to improve balance and reduce dizziness-related problems like vertigo.

Have you experienced vertigo? Join PatientsLikeMe today to see more suggestions from the community, or share your own.

Share this post on Twitter and help spread the word.


Multiple Sclerosis Awareness Week: Interview with Gardener

Posted March 10th, 2010 by

It’s National Multiple Sclerosis (MS) Awareness Week.  There are more than 17,400 patients in the PatientsLikeMe MS community sharing data about their symptoms, treatments and side effects, lifestyle modifications and overall health outcomes.

In honor of the week, and March being National MS Awareness Month, we will be posting interviews with MS patients and nonprofit partners on the blog each week to help raise awareness about real-world experiences with the condition and initiatives that are keeping the research going.  Today, is our interview with gardener, one of our very active patient members who joined the community back in 2007 just after it launched.  She recently answered some questions from Amy Morton, a member of our marketing team here at PatientsLikeMe, about life, living with MS and being a member of PatientsLikeMe.

2166 (Amy) What’s on your mind these days?
3203 (Gardener) Right now, at this moment, my cats, because they’re begging for food, and being very loud and persistent.

In general, I’ve been focusing on violin and accordion performances coming up in April. I’m playing dance solos. It should be fun. That, and figuring out something to make as a demo for this month’s sewing group. I went over two years of having something new at every meeting until October of last year, then got whacked by a bout of depression.

It’s lifting, and things are fun again. My friends aren’t annoying anymore, either. Come to think of it, everyone was kind of annoying during the worst of it. At the time, I told a friend I wanted to curl up in the bottom of my closet. She suggested bringing along a fluffy blanket and a pillow.  That wasn’t an annoying suggestion.

2166 (Amy) What do you enjoy most about winter?
3203 (Gardener) Watching my dog play in the snow. He likes the deep fluffy snow we’ve gotten recently and shows such joy running through it. The lower temperature is nice, too, as is meeting people for whom this is their first real winter. Seeing others enjoy things like snowball fights so much gives me a better outlook on winter. I have never been good at throwing, so I just watch.
2166 (Amy) How do you keep perspective with your condition?
3203 (Gardener) For a long time, I’ve tried to keep in mind that the only constant is change. That outlook helped a lot when I was diagnosed. This is no one’s fault, it’s not a lesson, and it didn’t happen for a reason. MS is a random thing. It’s hard to take random things personally. Also, I’ve had friends go through refugee situations. After hearing their stories, it’s hard to think of this as more than an inconvenience. Yes, MS sucks, but there are many things that are worse.
2166 (Amy) Share why you decided to make your profile public.
3203 (Gardener) Something that I’ve found frustrating in general is how few things people really discuss. By having the profiles open, you can see what others are taking for symptoms, and how they like the treatments. You can also see what kind of results people are getting with what they’re doing. It would be hypocritical to use a resource like that and not return the favor. Also, PatientsLikeMe feels like a safe place to share.
2166 (Amy) Thanks for sharing, Gardener!