5 posts tagged “monthly newsletter”

A Peek at the December Newsletters for Members

Posted December 21st, 2011 by

What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our December edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently, and if you are member who’s not opted in to the newsletter, sign up today.

MONTHLY MUSINGS

Can’t sleep this holiday season?  It’s not just you.  Did you know that…

  • More than 23,000 of you – nearly a fifth of all PatientsLikeMe members – report insomnia?
  • People with insomnia may also experience impaired function, mood issues (e.g. irritabilityanxiety) and daytime drowsiness as a result?
  • There are two forms of insomnia:  secondary (where it’s the symptom or side effect of something else) and primary (where it is its own disorder)?
  • Members with insomnia have shared their experiences via hundreds of treatment evaluations for prescription drugs such as AmbienTrazodoneSeroquel and Lunesta?
  • Members have also evaluated over-the-counter (OTC) sleep aids like diphenhydramine (Benadryl) and Melatonin as well as herbal supplements such as Valerian and Passionflower?
  • There are numerous forum discussions about insomnia, including the six featured below in “Join the Conversation”?

Finally, here’s something else to know.  Logging onto to the PatientsLikeMe forum in the dead of the night can be a great help.  It may not cure your insomnia, but chances are, you’ll find several others who are awake and going through the same thing.

Here’s hoping your holidays are as restful and joyful as possible.

– KateEmmaLizJeanetteSharry

Kate"" Emma"" Jeanette"" Sharry""

JOIN THE CONVERSATION

What’s happening in the forum in the midnight hour?  Check out some of these insightful threads about insomnia below.  Then jump in with your own questions and answers.

Need help with something on the site?  Visit the PatientsLikeMe Site Help Room for answers from veteran members.

THIS MONTH’S SITE IMPROVEMENTS

Thanks for your continued feedback about improving the site.  Here are our top functionality enhancements for December.

UPGRADED LABS AND TESTS
There are new labs and tests you can monitor at PatientsLikeMe. Use the search tool or browse the list to see what’s now available, including Blood Glucose, Ejection Fraction, PSA, Creatinine, AST and more.  Don’t see the lab or test that you’d like to monitor?  Email us at dataintegrity@patientslikeme.com with your request.

CLICKABLE CONDITION NAMES ON PROFILES
You can now click on the condition name in the header of any profile, including your own, to view the new-and-improved condition page.  Checking out someone’s profile and see a disease you don’t recognize? Simply click through to learn more.  Or from your own profile, click through on any of your conditions to see who else has it, the most commonly reported treatments and much more.


A Peek at the September Newsletter for Members

Posted September 30th, 2011 by

What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our August edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently, and if you are member who’s not opted in to the newsletter, sign up today.

MONTHLY MUSINGS

What type of exercise – and how much – is right for your condition?

We all know exercise is a good thing, but if you’re managing a disease, it can be a little trickier to find the right regimen. How much exercise? What type? How often? The answers, of course, are different for everyone, and it can take time and patience if you don’t know where to look. Why not start with patients like you?

A Patient's Walking Treatment Evaluation History

Patients with many different conditions have shared what’s worked and what hasn’t for more than 150 types of exercise. Some of the most common ones include walking, yoga, stretching, aquatic therapy and swimming. How do other members rate these exercises? You can find out in the treatment evaluations. As one member writes, “I have felt less need for pain meds, and I have slept better on the nights I walk.”

Whether you’ve found your ideal routine or are still searching, you may want to become part of an “online buddy system.” For example, subscribe to one of the forum threads on exercise listed below in the “Join the Conversation” section. Can’t find one for your room? Start your own. Let’s get moving together!

Kate, Emma, Liz, Jeanette & Sharry

Kate"" Emma"" Jeanette"" Sharry""

JOIN THE CONVERSATION

Check out what other patients are saying about exercise in the forum. Then jump in with your own questions and answers. (New members are welcome anytime!)

Need help with something on the site?  Visit the Technical Help Using PatientsLikeMe Room.

THIS MONTH’S SITE IMPROVEMENTS

Thanks for your continued feedback about improving the site, Here are our top functionality enhancements for September.

EMAIL AND NOTIFICATION UPGRADES
There are so many ways to stay connected at PatientsLikeMe – which can be a blessing and a curse sometimes. Recently, we made some major changes to our email and notification system. In addition to fixing reported bugs, we’ve made it easier for you to turn email notifications on/off with the click of a mouse. We’ve also improved the unsubscribe process. Visit your Email Settings page to update your preferences.

Your New Email Settings Page

HIDDEN FORUM TOPICS
Wish you could avoid certain forum threads? Consider it done with our new “Hide Topic” button (pictured below). They’re not gone forever if you change your mind, however. Simply go to the “My Hidden Topics” page to find them.

Hide Topics by Clicking This Button

AUTOMATIC LOGIN VIA VERIFIED EMAIL
If you’re tired of having to log in when you click a link in a PatientsLikeMe email – such as this monthly newsletter – you’re going to love hearing that you can now log in automatically via verified email. To turn on this time-saving feature, go to your Account Settings page and select “Yes” as shown below.

Click Yes and You'll Never Have to Log In to Click Links in a PatientsLikeMe Email Again

NEW OUTCOME SCORE FOR AUTISM
Finally, we’ve introduced a new outcome score for patients with an autism spectrum disorder (ASD) called the Autism Treatment Evaluation Checklist (ATEC). You’ll see that the ATEC score is now displayed in the “puzzle piece” icon in all ASD patient nuggets, as illustrated below.

Autism Patient Nugget with ATEC Score