In case you missed it, check out this round up of some of the stories making headlines in June…
- Apple Watch will now be able to monitor PD: Tech developers announced this month that the Apple Watch will now be able to track two common PD symptoms — tremors and dyskinesia — and map them out in graphs to help doctors (and patients) with PD monitoring. Fill me in.
- Study points to an “overlooked driver” of PD — Bacteriophages: What are bacteriophages or “phages”? Viruses that infect bacteria. New research shows that people with PD may have an overabundance of phages that kill “good” bacteria in the microbiome or gut, which could mean a new target for treating PD. More on the study.
- How common are cognitive issues with lupus? Very. A doctor specializing in lupus research says nearly 40% of people with SLE have some level of cognitive impairment, such as trouble with attention, recall and concentration — so doctors should monitor it early and often. Read his Q&A.
- Drug may replace chemo as initial treatment for many with NSCLC: New clinical trial results of the immunotherapy drug Keytruda show that it can be a more effective first treatment than chemotherapy for many patients with advanced non-small cell lung cancer (NSCLC) — even those with low levels of the PD-L1 gene mutation. Tell me more.
- VETS Act expands access to telehealth: Late last month, Congress passed the VETS Act, expanding access to telehealth for more than 20 million veterans, including 30,000 living with MS. Get the full story.
- Now enrolling: Nationwide clinical trial: Researchers at John’s Hopkins University are seeking newly diagnosed or untreated patients living with relapsing-remitting MS (RRMS) to participate in a study to help inform treatment decisions. Learn more.
- Practices for overcoming trauma: Results from a new study found that women who combined meditation with aerobic exercise had far fewer trauma-related thoughts, and saw an uptick in feelings of self worth. Get the full story
- When antidepressants won’t work: “I knew it wasn’t going to be a magical Cinderella transformation, but I definitely feel like a newer person.” Read one man’s experience with Transcranial Magnetic Stimulation (TMS) after first-line treatments didn’t work. More info.
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- Filed Under: Bipolar disorder, Cancer, Conditions, Depression, Lupus, Mental Health, Multiple Sclerosis, Parkinson's Disease, Patient Experiences, PTSD
- Tags: active clinical trials, apple watch, clinical trial, cognitive impairment, immunotherapy, lung cancer, lupus community, mental health community, multiple sclerosis, new study, Parkinson's Community, PD symptoms, Telehealth
Have you ever wondered how best to interact with someone who is living with depression, bipolar disorder or another mental health condition? Have you worried that you’re saying or doing the wrong things?
Last week we recognized Mental Illness Awareness Week on the blog, and to continue our coverage, today we thought we’d share with you some of the tips suggested by our members in a ongoing forum discussion entitled “What NOT to Do with the Mentally Unwell.”
What our members say not to do…
- Don’t suggest activities that interrupt their regular sleep schedule.
- Don’t imply they are faking just because they “look okay” to you.
- Don’t ask if they are taking their meds every time something happens.
- Don’t get upset because you can’t fix it – or make it better.
- Don’t act like they are “made of glass” and avoid dealing with them.
- Don’t push the latest cure-all you saw on TV or read about.
- Don’t suggest that they should “snap out of it” because “it could be worse.”
- Don’t talk down/louder/slower as if they are a child or have low IQ.
- Don’t buy into the stigmas or stereotypes and forget who they really are.
- Don’t abandon them just because they are depressed or unwell.
What they suggest you do instead…
- Do give them a hug for no reason but because you love them.
- Do be gentle with your words and be an anchor amidst the storm.
- Do make chicken soup and keep the fridge stocked with favorites.
- Do listen and ask questions, and don’t feel like you have to relate.
- Do remember that it’s okay if you don’t know what to do or how to help.
- Do call or email just to let them know that you are there for them.
- Do offer to go on an evening stroll or a walk in the park.
- Do allow them to be alone if desired and come to you when ready.
- Do know that you don’t have to cheer them up – only help keep them safe.
- Do remember they are the same person they always were, just with a diagnosis.
Do you have other suggestions to add? Or perhaps a different perspective? Share your insights in the comments section, and if you’re not already a member of PatientsLikeMe, connect with thousands of others like you in our active mental health community.