4 posts tagged “Lupus Awareness Month”

Putting on purple for lupus awareness

Posted May 15th, 2015 by

If you’ve got something purple to wear, today’s your day – the Lupus Foundation of America (LFA) is encouraging everyone to “Put on Purple” to help raise awareness for lupus.

Lupus is an autoimmune disorder that affects millions of people worldwide, and the majority of these patients are women. Common symptoms include extreme fatigue, swollen joints, headaches, butterfly rashes and more. Check out these infographics from the LFA to learn more:

 

 

 

Today, the PatientsLikeMe Team is putting on purple to help shine a spotlight on lupus. Share your own photos on social media using the #POPGA or #PutOnPurple hashtags.

And if you are living with lupus, don’t hesitate to reach out to the community on PatientsLikeMe – over 7,000 people are sharing their experiences to help everyone solve the mystery of lupus.

 

Share this post on Twitter and help spread the word for lupus.


Taking action for lupus awareness in May

Posted May 16th, 2014 by


If you think you look good in purple, you’re in luck – today is Put on Purple Day, sponsored by the Lupus Foundation of America. As part of the greater Lupus Awareness (Action!) Month in May, today is your chance to make lupus visible and learn about the effects of this chronic inflammatory condition.

Lupus is classified as an immunological disorder by the National Institute of Health, which means that it can affect anything from your joints, skin and kidneys to your heart, lungs and brain.1 Systemic lupus erythematosus is the most common type of lupus, but there are a few other kinds that are much more rare. The cause of lupus is unknown, and anyone can be diagnosed, although it mostly affects women. Some common symptoms of lupus include:

  • Pain or swelling in joints and muscle pain
  • Fever with no known cause
  • Red rashes, most often on the face
  • Chest pain when taking a deep breath
  • Hair loss
  • Pale or purple fingers or toes
  • Sensitivity to the sun
  • Swelling in legs or around eyes
  • Mouth ulcers
  • Swollen glands

Since these symptoms are frequently caused by many other health conditions, you can see why getting diagnosed with lupus can be a difficult process. Many people who are living with lupus don’t even know it yet! 2 3

To help raise awareness for lupus, snap a photo of yourself in purple and submit it to the Lupus Foundation’s Tumblr page. And if you’d like some more ideas for awareness in May, visit the official Lupus Awareness Month page for info on donations, toolkits, quick facts and more.

The PatientsLikeMe team all decked out for Put on Purple Day!

The PatientsLikeMe lupus community is growing, so if you’ve been diagnosed, reach out to the more than 4,000 members who know all about living with the condition. They’re donating health data on treatments and symptoms, and don’t hesitate to ask a question in the forum, either – the community is always up for sharing what they know.

 Share this post on twitter and help spread the word for Lupus Awareness Month.


1 http://www.niams.nih.gov/Health_Info/Lupus/lupus_ff.asp

2 http://www.niams.nih.gov/Health_Info/Lupus/lupus_ff.asp

3 https://www.womenshealth.gov/publications/our-publications/fact-sheet/lupus.html