Teasing.Physical violence.Staring.Social isolation.Name-calling.
Many of our members with psoriasis, a chronic autoimmune condition that can produce red, scaly patches and other skin symptoms, report experiencing various forms of bullying while growing up. One relays the story of a teacher who repeatedly sent her to the nurse’s office, assuming that she had a contagious condition. Another recalls receiving notes in her locker informing her that she was not welcome in gym class or study group. And yet another shares that her classmates spread sexual rumors that her psoriasis was really rug burn and voted her most likely to get pregnant in high school.
These are just a few heart-wrenching examples of the stigma, ignorance and misinformation that often surround psoriasis, which is not contagious. For these members, the bullying they encountered growing up often had a major psychological impact that included hurt feelings, self-consciousness, depression, anger, loneliness and dating difficulties. Some report that it ultimately made them stronger, however. Have you been mistreated as a result of your psoriasis? Share your stories with others who can truly relate in PatientsLikeMe’s growing psoriasis community, which now has more than 5,000 members.
Also, find answers and take control of your psoriasis care plan by learning from PatientsLikeMe members’ treatment evaluations and seasonal survey answers as well as our ongoing dermatologist interview series, which delves into investigational psoriasis treatments currently in clinical trials and other psoriasis treatment trends. Stay tuned to the blog for another dermatologist interview very soon!
- Filed Under: Conditions, Patient Experiences
- Tags: bullying, clinical trials for psoriasis, depression, dermatologist interviews, investigational treatments for psoriasis, loneliness, name calling, online psoriasis community, psoriasis, psoriasis treatment, psoriasis treatment evaluations, psychological impact of psoriasis, self-consciousness, social isolation, stigma, teasing
It’s the most wonderful time of the year. Or is it?
The holidays can be a time of merriment and joy marked by festive parties and family reunions. But they can also be quite challenging.
Despite the great cheer advertised everywhere you look, some people find themselves struggling with stress, anxiety, loneliness and/or depression. This phenomenon is sometimes called the “holiday blues.” Add to that things like fatigue, insomnia and seasonal affective disorder (SAD) – which affect many PatientsLikeMe members on a regular basis – and you have the recipe for a perfect holiday storm.
Here’s a look at how our patients are attempting to cope with the stresses of the season:
- “Seeing all the lights, the preparations, the shopping for the holidays makes me dread what is coming. I try to go to low-key places where there isn’t as much traffic and aren’t as many people. I try to play down the importance of everything so I don’t become so obsessed with choices and opinions. I take breaks. LOTS of breaks. I try to make sure I take them before I even become overwhelmed in the first place. And I try to find free things to replace some of the costs – either as presents or activities.” – Patient with major depressive disorder
- “Having family meet on a major holiday is enough to upset the emotional applecart so to speak. Try just to do an average job of cooking, it doesn’t have to be perfect. Take a break when you can…get involved in objective projects: carefully following a recipe or cooking something with your mind fully on it can help calm panic attacks. If you are doing your best, that will be the best you can do.” – Patient with Parkinson’s
- “It puts a lot of stress and pressure on me. I have three children who get a lil’ demanding, and then a husband who expects me to travel with three demanding children and then stay at relatives’ tiny houses, etc. The noise, the gossip, the fake hugs from relatives who really do not like me, it all honestly just ‘gets to me.’ But this year, I’m taking my power back by saying NO to the parts of the holidays in which I do not want to participate.” – Patient with bipolar I disorder
- “Sometimes I get depressed because I’m usually one of those people who have to get assistance to give their children gifts for the holidays. I also get depressed because I don’t look the way I want to (I am overweight) and do not want people to see me like that. So the gatherings can be nerve wracking for me. [But] I am learning to let go of the ‘shoulds.’ Not easy, but it can be done. If I am really not feeling up to something (I get exhausted really easily), then I allow myself to not go, or not run the thing like I used to, or only bring one thing instead of 3 or 4. Pacing myself has been a good thing to learn.” – Patient with fibromyalgia
Are you feeling signs of the “holiday blues”? Are the demands on your time and your pocketbook starting to overwhelm you? Before you pack up the car or welcome any house guests, check out these great tips from the Mayo Clinic for getting through the holidays with as much joy as possible.
- Filed Under: ALS, Chronic Fatigue Syndrome, Conditions, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Rare Diseases
- Tags: anxiety, Christmas stress, coping tips, fatigue, holiday blues, holiday stress, insomnia, loneliness, Seasonal Affective Disorder