2 posts tagged “Inspire”

Fundraising for a health-related charity walk/run? Get sponsored by PatientsLikeMe!

Posted September 21st, 2018 by

Looking for ideas for raising more money for an upcoming cancer walk, MS bike ride, or other health-related charity event where you’ll be hitting the streets? Learn more about PatientsLikeMeInMotion! It’s a program that sponsors you and your team as you walk, run, cycle (etc.) with a nonprofit organization to raise funds and awareness for your disease or health condition (psst—PatientsLikeMe gear included). Read on!

PatientsLikeMeInMotion has grown a lot since we launched it back in 2009! Members have raised funds for cancer, multiple sclerosis, ALS, epilepsy, kidney disease, psoriasis, mental health and more (just take a peek at our Pinterest board).

In 2017, 89 members and their teams (with a total of nearly 2,000 participants) raised awareness and over $14,000 for their diseases.

In the first half of 2018, 73 members from 24 states and their teams have already participated and raised more than $18,000.

Interested in sponsorship by PatientsLikeMe? Here’s how to apply:

  1. Join PatientsLikeMe (membership is free)!
  2. Make sure your profile is up-to-date.
  3. Submit a request with your team and event details, including your preference of spiffy T-shirts or PatientsLikeMe hats (like the one above). We’ll confirm the details and you’ll be on your way. (See the full guidelines here to learn more.)

Past participants, inspire others. If you’ve been a part of PatientsLikeMeInMotion, feel free to post a picture in the forum (and on social media along with the tag #MembersInMotion)!

Share this post on Twitter and help spread the word.


The Patient Voice Heard Loud and Clear at AHCJ ’11

Posted April 19th, 2011 by

Last week, we had the opportunity to be a part of the Association of Health Care Journalists (AHCJ) annual conference in Philadelphia, PA.  Carla Johnson, medical writer for the Associated Press, invited PatientsLikeMe to be part of her session entitled “Tapping into the e-patient phenomenon.”  It was a great opportunity for us to help healthcare journalists learn more about how to interact (and coordinate interviews) with patients participating in online communities like ours.

What better way to represent the patient voice than to actually have a patient speak on your behalf?  We invited Pamela McGhee, an active member of PatientsLikeMe who had previously done some media interviews, to sit on the panel and provide some tips to journalists on what’s important to patients interviewees.  Pamela was a welcomed and refreshingly enthusiastic panel participant who shared those tips (i.e., the importance of following up after an interview or doing your homework beforehand) as well as her experiences of living with MS and using PatientsLikeMe to “improve her life.”

Moderated by Carla, the rest of the panel included Dan Childs, the coordinating producer for ABCNews.com, and John Novack, director of communications at Inspire.  Both had a lot to share about their experiences in coordinating and conducting patient interviews.  A video highlight reel is below, courtesy of Joy Robertson at KOLR-TV.

In addition to having Pamela there to share her personal experiences of interacting with the media, we also handed out these one-sheets, which outline how to arrange an interview at PatientsLikeMe, as well as four of our own tips for conducting successful patient interviews.

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Thanks again to Pamela for being such an inspirational and empowered patient, one willing to openly share her stories and experiences for others to learn from!

PatientsLikeMe member lscanlon