19 posts tagged “HIV/AIDS”

How Would You Evaluate Your Experience with Myrin P-Forte?

Posted April 7th, 2011 by

Myrin P-Forte is an anti-tuberculosis agent that contains ethambutol, rifampicin, isoniasad and pyrazinamide. An anti-mycobacterial treatment, ethambutol eliminates certain bacteria that cause tuberculosis and is used in combination with other drugs to treat tuberculosis and prevent transmission to others.

At PatientsLikeMe, where more than 120,000 patients are sharing their experiences with conditions, symptoms, treatments and more, one patient with HIV reports using Myrin P-Forte to treat “tuberculosis in the lymph nodes.”  This patient rates the effectiveness as “moderate,” reports experiencing two side effects (red eyes and feeling intoxicated) and offers the following tip on his treatment evaluation:  “Do not consume an excessive amount of alcohol the night before taking this treatment… nausea/vomiting, headache, etc., will be experienced.”

If you’ve been prescribed Myrin P-Forte, we encourage you to share your experiences to help other patients.  PatientsLikeMe’s unique data-sharing platform allows you to share detailed data about all types of treatments, supplements and lifestyle modifications that have helped you or simply had no effect.

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Patient Choices: The Deciding Factors

Posted March 2nd, 2011 by

screen-shot-2011-03-01-at-45607-pmIn a recent series on patient choices, we’ve highlighted a lot of the decisions patients like you have to make on a daily basis.  A few weeks ago, David S. Williams kicked off the series with a blog about the treatment and career decisions that patients like you, and his mother, have made.  Kate Brigham then highlighted examples of the social and emotional tradeoffs you make every day.  Last week, we published the results of a recent patient poll where more than 4,000 of you answered questions about the choices you’ve made to tell (or not tell) others about your diagnosis.  (See “Patient Choices: The Shape of Sharing” and “Patient Choices:  How Open Are You Now?“)

Today, we continue the series by highlighting examples of the choices patients like you have made in the past twelve months (pulled from 2010 newsletter interviews).


Patient Choices About…

Being Open

“I decided to make my profile public with the hope that something I have experienced, have done, or could say may help someone else along the way. Because my family seems to still live with the stigma of HIV/AIDS and prefer I don’t allow others close to our family to know of my status, I guess maybe in a way it is my subconscious defiance to my family’s fears.” – memyselfandHIV

Staying Active

“I imagine that by running the races I do, and talking to people about the benefits of a healthy and active lifestyle, that I might motivate a few people to become more active themselves. I mostly want people who like me have MS, but are still capable of being active, to know that it might help their symptoms and make them more comfortable.” – Ramilla

Making Lifestyle Changes

“I can’t drive under no means because where I live you need to be seizure-free for five years and I never am. So that’s a challenge having to depend on people or public transportation. Plus, where I work my co-workers aren’t as understanding as people were when I was a child.”  – Blueeyedgoddezz

Tackling Challenges

“My biggest challenge of late has been to deal with my newly diagnosed diabetes. I am fortunate, because it was discovered in the early stages, so I’m doing quite well controlling my glucose levels. I’m learning to accept that there will be some high readings, rather than stressing over them, since my doctor is very pleased with my progress.” – Dirty Butter

Retiring

An interview with AlwaysLearning on her choice to retire from teaching.


What choices have you made lately?

PatientsLikeMe member Emma