Dimitri is living with multiple sclerosis (MS), and he experiences dramatic changes in his body temperature every day. These swings can aggravate his other symptoms and leave him feeling suffocated. As he puts it, “a single bead of sweat can bring me to my knees.”
You are now seeing hot and cold
Photographed by Jamie MacFayden
Inspired by Dimitri’s invisible symptoms
He worked with photographer Jamie MacFayden to portray his hot and cold sensations as part of the Multiple Sclerosis Society of Australia’s (MSA) Seeing [MS] campaign, which we also posted about on the blog in July (blurred vision) and August (pain). It’s all about raising awareness and showing everyone the invisible symptoms some people are living with because of their MS. Stay tuned for more Seeing [MS] posts.
Share this post on Twitter and help spread the word for MS.
- Filed Under: Patient Experiences
- Tags: australia, cold, hidden, hot, hot and cold, invisible, invisible symptoms, Jamie, Jamie MacFayden, MacFayden, multiple, multiple sclerosis, sclerosis, seeing, Seeing MS, swing, symptoms, temperature, unnoticed
“I’m burnt alive every day.”
That’s how Stephen Papadopoulos, an Australian living with multiple sclerosis (MS), describes the level of pain he experiences on a daily basis. Pain is the second of nine symptoms portrayed in the Multiple Sclerosis Society of Australia’s (MSA) Seeing [MS] awareness campaign, and Stephen details his experience in the video below:
You are now seeing pain
Photographed by Garth Oriander
Inspired by Stephen Papadopoulos’ invisible symptom
We’re highlighting pain this month in an effort to reveal the invisible side of living with MS. You can also read other posts on pain – of particular note, Tam’s story about her private, intense pain.
Share this post on twitter and help spread the word for MS.
- Filed Under: Multiple Sclerosis, Patient Experiences
- Tags: hidden, invisible, MSA, multiple, multiple sclerosis, pain, sclerosis, seeing, Seeing MS, Steve, Steve Papadopoulos, symptoms