2 posts tagged “health information collaboration”

Patient-focused organizations join forces to build awareness and participation

Posted September 10th, 2013 by

The innovative medical research philanthropy Cures Within Reach has announced a marketing partnership with PatientsLikeMe to work together to improve patient lives.

Sep. 10, 2013 – SKOKIE, Ill — Cures Within Reach, a non-profit focused on research to repurpose existing compounds for new and immediate use, and PatientsLikeMe, a patient network and real-time research platform, are both thinking out of the box to help patients get what they need in today’s challenging healthcare climate.

Cures Within Reach (www.cureswithinreach.org) is dedicated to saving lives of patients with both complex and rare conditions by sourcing, funding and stewarding research that repurposes FDA-approved drugs, devices and nutriceuticals.  Anecdotally described as “teaching old drugs new tricks,” companies and research institutions rarely embrace this methodology due to low profit potential, while the potential for creating effective and affordable cures or treatments for patients is very high.  Ideas for these projects come from researchers, clinicians and sometimes patients themselves.

PatientsLikeMe® (www.patientslikeme.com) is a patient network that improves lives and a real-time research platform that advances medicine. Through the network, patients connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers, and nonprofits develop more effective products, services and care.

The initial partnership will consist of cross-marketing programs to drive awareness and participation.  “Cures Within Reach is leading the way in a unique research model that makes a tangible difference for patients today.  We are happy to connect with an organization whose work so directly supports our patient community,” says PatientsLikeMe Executive Vice President of Marketing and Patient Advocacy Michael Evers.

Dr. Bruce Bloom, President and Chief Science Officer of Cures Within Reach, shares that moving forward, CWR will “find collaborations with PatientsLikeMe and their powerful patient community that not only increase awareness, but also ultimately strengthen each organization’s research work and patient impact.”

To learn more about PatientsLikeMe, visit www.patientslikeme.com

To learn more about Cures Within Reach, visit www.cureswithinreach.org


PatientsLikeMe and Merck Establish Health Information Collaboration Focused on Psoriasis

Posted August 15th, 2012 by

Patient-Based Research Aims to Produce New Insights Into Most Common Autoimmune Disease in U.S.

PatientsLikeMe announces it has entered into a collaboration with Merck, known as MSD outside the United States and Canada, to evaluate the impact of psoriasis on patients and to inform a novel approach to improving outcomes.

“A broader and more human view of psoriasis will help patients and their doctors understand the true nature of the disease,” says Ben Heywood, President and Co-founder of PatientsLikeMe. “We’re excited to collaborate with patients and Merck to uncover insights about the disease that may lead to better approaches for patients managing their condition day-to-day; providers creating care plans; and researchers developing treatments.”

According to the National Psoriasis Foundation, psoriasis is a non-contagious, chronic, autoimmune disease that appears on the skin and is associated with other serious health conditions including diabetes, heart disease and depression. It is estimated to affect over 7.5 million people in the United States.

“Effective use of health information provides the path forward to patient-centered care and personalized medicine,” said Dr. Sachin H. Jain, Chief Medical Information and Innovation Officer, Merck. “Our collaboration with PatientsLikeMe is an important part of Merck’s strategy to establish and apply innovative solutions that improve disease management and enhance the patient experience.”

Under the agreement, PatientsLikeMe will work directly with Merck’s clinical researchers and epidemiologists to analyze and interpret psoriasis patient-reported data.

PatientsLikeMe has an active community of psoriasis patients, where nearly 2,000 people share data and stories to reveal what it’s like to have the disease and what they do to treat it. Health profiles, forum postings and journal entries highlight their experiences, and a new survey reveals how the summer season affects them physically and emotionally. Go to http://plmjoin.com/psoriasis to learn more.

About PatientsLikeMe

PatientsLikeMe® (www.patientslikeme.com) is the world’s leading online health data sharing platform. PatientsLikeMe® creates new knowledge by charting the real-world course of disease through the shared experiences of patients. While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real world and accelerate the discovery of new, more effective treatments. [Follow company news on Twitter.com/PatientsLikeMe and https://blog.patientslikeme.com.]