fundraising

Faces Wanted: One Man’s Mission to Drive Awareness of Parkinson’s Disease

“I have a hope that this foundation has a short life. We exist to help fund and find a cure. To do that we need to generate and raise awareness of Parkinson’s disease and its impact to the public. Awareness in turn will aid in generation of funding. Funding for a cure and funding for the personal side of the disease. Programs to get people moving, walking, riding, dancing, and exercising.” – Mike Justak,  Founder of Mike Justak Foundation for Parkinson’s Disease When PatientsLikeMe member Mike Justak (MJUSAK) realized that Parkinson’s disease (PD) funding was lagging, he decided to take action.  His goal:  to “put a face to Parkinson’s” and highlight the fact that it occurs in patients under the age of 50 as well as older patients. Mike founded the Mike Justak Foundation for Parkinson’s Disease, and this year he began working on a “Faces of Parkinson’s Video Wall.”  It’s a pastiche of videos submitted by PD patients around the country that he plans to submit to the Parkinson’s Action Network, state governors and US senators.  To add your “face” to the project, all you have to do is submit a short, close-up video stating who you are, where …

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Six Days Until the Parkinson’s Unity Walk

Parkinson’s Awareness Month isn’t over yet!  This month-long effort is capped off by the Parkinson’s Unity Walk, which takes place Saturday, April 28th, in New York City’s Central Park. The largest grassroots awareness event for Parkinson’s disease (PD), the Unity Walk is anticipated to attract more than 10,000 participants.  If you’ve never attended something of that size, it’s quite a lot of people.  Beyond the sheer scope of the event, there’s another noteworthy fact:  100% of all donations go towards research supported by the seven major US Parkinson’s foundations.*  In 2011, that came to more than $1.5 million! Now in its 18th year, the Unity Walk is an opportunity for solidarity amongst the different PD organizations.  Admirably, these groups have shown there’s no need to compete for funds when you can come together as one.  “This event truly unifies the whole Parkinson’s community behind a common mission—supporting the best, cutting-edge research,” says Joyce Oberdorf, President and CEO of the National Parkinson Foundation.  “It is like no other.” What’s new for 2012?  First, there’s a new 1.4 mile walk route in Central Park – slightly longer than 2011 but shorter than in previous years.  (It is wheelchair accessible.)  There will be …

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Today’s Photo: A Celebration of Solidarity

The weather is warming up, and calendars are filling up.  That means it’s time to starting thinking about spring walk/run events for your health condition! For inspiration, please meet multiple sclerosis patient NewLife (center), who led a PatientsLikeMeInMotion-sponsored team at Walk MS in St. Louis, Missouri.  Including a monetary donation from PatientsLikeMe, NewLife and her team raised $2,000 for MS research.  The group also shared a delightful day together.  NewLife says, “I was very touched by the support of my friends walking with me.  It truly meant a lot.” Congrats to NewLife and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your condition. We’re honored to support you every step of the way.  For more PatientsLikeMeInMotion team photos, check out our Flickr album. Thinking about organizing a team for this spring or summer? Learn more about the PatientsLikeMeInMotion program today.

Today’s Photo: Texans in Motion for ALS

Please meet ALS patient alsgirl (front and center in the wheelchair), who led a PatientsLikeMeInMotion-sponsored team at the 2011 Walk to Defeat ALS in Dallas, Texas.  A longtime PatientsLikeMe member who is part of the ALS Public Registry, alsgirl has been living with this degenerative disorder – also known as Lou Gehrig’s disease – for 16 years. Congrats to alsgirl and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your health condition. We’re honored to support you along your journey.  For more PatientsLikeMeInMotion team photos, check out our growing Flickr slideshow.  (And if you’re a PatientsLikeMeInMotion team leader who has NOT sent in photos, we encourage you to do so.  You just might be featured on the blog next!) Thinking about organizing a team for spring?  Learn more about the PatientsLikeMeInMotion program today.

Today’s Photo: A Sea of Bright Blue in Motion

Please meet ALS patient iceberg (front right), who led a PatientsLikeMeInMotion-sponsored team at the 2011 Walk to Defeat ALS in Western Pennsylvania.  We count at least 25 bright blue PatientsLikeMeInMotion t-shirts worn by the team (called “Hrezo’s Heroes”), making this one of the biggest groups we’ve sponsored! Congrats to iceberg and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your health condition. We’re honored to support you along your journey.  For more PatientsLikeMeInMotion team photos, check out our growing Flickr slideshow. Thinking about organizing a team for next spring?  Learn more about the PatientsLikeMeInMotion program today.

Today’s Photo: Mama in Motion

Please meet multiple sclerosis (MS) patient hotmama08, who led a PatientsLikeMeInMotion-sponsored team that included two four-legged advocates at Walk MS in Columbia, SC, on May 14, 2011.  We especially love how the team member to the right wore bright blue shoes to match her PatientsLikeMeInMotion t-shirt! Congrats to hotmama08 and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your health condition. We’re honored to support you every step of the way. For more PatientsLikeMeInMotion team photos, check out our growing Flickr slideshow. Thinking about organizing a team for next spring?  Learn more about the PatientsLikeMeInMotion program today.

Today’s Photo: Uniting for Parkinson’s

Please meet Parkinson’s disease (PD) patient Judith, who led a PatientsLikeMeInMotion-sponsored team at the Parkinson’s Unity Walk in New York City last April.  Held annually in Central Park, this massive grassroots event donates 100% of funds raised to PD research. Congrats to Judith and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your condition. We’re honored to support you every step of the way.  For more PatientsLikeMeInMotion team photos, check out our Flickr gallery. Thinking about organizing a team for next spring?  Learn more about the PatientsLikeMeInMotion program today.

“A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI

Last night, the PatientsLikeMe team came together for a great cause: the “White Coat Affair” gala benefit in support of the ALS Therapy Development Institute (ALS TDI).  Founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, ALS TDI is the world’s most advanced research laboratory dedicated to ALS. Held the night before the institute’s 7th Annual Leadership Summit, the gala event included the presentation of the first-ever “ALS TDI Lou Gehrig Award” to US Congressman Michael Capuano as well as special recognition for ALS TDI Chairman of the Board Augie Nieto, who has raised more than $30 million for the institute since 2007. Congratulations to ALS TDI on 12 years of cutting-edge research and leadership.

Photo of the Week: Angels in Motion

Please meet ALS patient sillyangel, who led a PatientsLikeMeInMotion-sponsored team at the Walk to Defeat ALS in Des Moines, Iowa, on October 8, 2011. As you’ll see, she proudly wore her bright blue PatientsLikeMeInMotion t-shirt to stand out in the crowd. Congrats to sillyangel and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your condition. We’re honored to support you along your journey.  For more PatientsLikeMeInMotion team photos, check out our new Flickr slideshow. Organizing a team for this fall – or next spring?  Sign up for PatientsLikeMeInMotion today.

Photo of the Week: Little People in Motion

Please meet the youngest supporters of MS member Not Awake, who led a PatientsLikeMeInMotion-sponsored team at a Walk MS event in Springfield, Missouri, this spring. Although our bright blue t-shirts are offered in adult sizes only, you’ll see that this young fellow was able to wear a creatively adapted version nonetheless. Congrats to Not Awake and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your condition. We’re honored to support you every step of the way.  For more PatientsLikeMeInMotion team photos, check out our new Flickr slideshow. Organizing a team for this fall – or next spring?  Sign up for PatientsLikeMeInMotion today.

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