5 posts tagged “forum discussion”

Driving with Parkinson’s disease: Safety considerations + turning over the keys

Posted 1 month ago by

Are you still driving with Parkinson’s disease? Check out some safety considerations and pointers for determining if it’s time to turn over the keys. Plus, explore how others with PD have handled this tricky topic and see some alternate ways of getting around.

Considerations for driving with PD + 7 questions to ask yourself

“You will likely be able to drive safely and legally for several years, depending on your age and general physical condition,” according to the Michael J. Fox Foundation. “However, Parkinson’s disease eventually affects reaction time, ability to handle multiple tasks, vision and judgment.”

Everyone with PD is living with their own mix of motor and non-motor symptoms, rate of disease progression, and reaction to medication (such as levodopa “ons and offs”) — all of which can affect driving abilities.

There are currently no set guidelines for neurologists to determine someone’s fitness to drive, so doctors consider patients’ skills and symptoms on a case-by-case basis, according to ParkinsonsDisease.net. They recommend considering these questions to help determine if you’re still fit to drive:

  • How is my vision? Can I see well at night? Can I distinguish colors, such as in traffic lights?
  • Would I be putting my passenger (friend or loved one) at risk?
  • How fast is my reaction time? Could I safely avoid a surprise obstacle in the road?
  • Has anyone (friend or family member) commented negatively on my ability to drive?
  • Can I handle multiple activities at the same time (whether driving or not)?
  • Can I effectively and quickly turn the wheel or step on the brake with enough strength?
  • Do any of my medications cause side effects like sleepiness, dizziness, blurred vision, or confusion?

AAA Foundation for Traffic Safety published this self-assessment quiz and booklet for the general population of drivers ages 65+, but your own evaluation of your driving (and even your doctor’s assessment) may not capture all the true risks.

Driving assessments

PatientsLikeMe members have talked about how you can get a driving assessment to help you independently determine your driving abilities (click here to learn more about different types of professional driving assessments; note: these assessments are not covered by Medicare or private health insurance and you should ask if the results may be shared with your state and affect the status of your driver’s license).

Older drivers can also attend a (confidential) CarFit event, where a team of trained technicians and/or health professionals work with you to ensure you “fit” your vehicle properly for maximum comfort and safety.

Your community’s experiences

Join PatientsLikeMe or log in to see what members have said about the challenges of giving up their keys — as well as the potential bright side, such as no longer having to stress about driving (and associated costs, like car payments, insurance and gas) and — more importantly — possibly hurting someone.

Karl Robb (our blog partner), who has young-onset PD, has written about how he realized he gave up driving at age 30 because of worsening dyskinesia. “Relinquishing the keys to your car is a selfless act of caring and compassion,” he says in a piece for the Parkinson’s Foundation. “It shows that you care about yourself and those who may be put in harm’s way.”

Getting around town

Thinking about giving up or reducing your driving? Look into public transportation or free/reduced-cost transportation services in your area, and ask friends and family for rides (it can help to plan ahead and have a set calendar or day of each week for running errands with them).

“Turns out it is a good time to be a non-driver,” notes one member. “Surely you have heard of LYFT and Uber? They offer inexpensive rides in many US cities. maybe your family could set you up with one.” (See the growing list of cities that Lyft and Uber serve, as well as ever-expanding delivery services, like Instacart for groceries and medications/pharmacy goods.)

Also, explore these other transportation resources:

Join PatientsLikeMe and this PD forum discussion to add your thoughts, questions or concerns about driving. The community is here for you!

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Getting back in the groove — 5 hacks + hints for routines that work

Posted 2 months ago by

Even if you haven’t been a student for several years, back-to-school season feels like the time to get back into a routine. What’s involved in a good routine? And what are the potential health perks of a basic regimen? See what the research shows, and join PatientsLikeMe to swap ideas with other members in this forum chat.

How can routines help?

In the business world, countless books and blog posts have touted the importance of routines when you want to succeed.

Many PatientsLikeMe members have talked about the value of routines in coping with a health condition (log in and check out thousands of mentions of “routines” in the forums).

“For me, having a routine with a chronic condition is a must,” says one member with fibromyalgia. “I don’t have to think what I have to do, it is already in my routine.”

Health-wise, having a regimen can help people of all ages. Studies of preschoolers have shown that family routines (with regulated meals, bedtime and screen time) may improve kids’ emotional health and reduce the risk of obesity.

Johns Hopkins Medicine reports that healthy habits and routines help older people, as well. See their seven-year study of people ages 44 to 84 who significantly reduced their heart-health risks by adopting and sticking with certain healthy behaviors (like being physically active for 30+ minutes most days of the week).

What’s involved in a good routine?

Humans are creatures of habit, so routines offer the structure we crave and can help relieve stress. So what goes into a (generally) healthy routine? And what can you get out of it in return?

  • A solid sleep schedule — with the same bedtime and wake-up time, even on weekends — helps regulate your body’s internal clock and sleep more soundly at night, according to the National Sleep Foundation (learn more in our recent write-ups on circadian rhythm and bedtime routines).
  • Healthy, regular meals (home-cooked, if at all possible) mean you’ll have the energy you need and won’t reach for fast food or junky snacks too often. Some people swear by a weekly meal prep day. Research also shows that when we eat (not just what we eat) can impact our circadian rhythm and longterm health. For example, eating over the course of a 15-hour window each day (rather than an 8- to 10-hour span) may throw off your metabolism.
  • Building in time for physical activity and self-care can help boost both mental and physical health. Studies have found that even light exercise is beneficial. Calming activities, like guided meditation and affirmations, or writing or sketching in a journal, are a nice way to start or end the day.
  • Embedding your medication regimen into your daily routine may also help you stick with your treatment plan. One study found that an activity- or cue-based system, such as taking medications while your coffee is brewing or during the weather report on the morning news, works well for some people, rather than just relying on the clock.

Check with your health care providers for personalized advice, of course.

5 hacks and hints for routines that stick

Have you struggled to stick with routines in the past? Consider these fresh ideas and approaches:

  • Stock up on supplies to help keep you on track (just like students do!), such as a daily planner, or colorful sticky notes and pens to jot down reminders and keep tabs on taking medications. You can find lots of nifty gear these days to help you store medshit your hydration goals and more.
  • Turn to technology, such as smartphone alarms and smart home devices to give you a nudge. From wearable activity trackers to apps that remind you it’s bedtime and alarm clocks that mimic the sunrise, there are more and more products geared toward healthy habits.
  • Try weekly routines with catchy names, like “Meatless Mondays,” if you’re trying to cut back on meat, “Takeout Tuesdays,” if you want to limit restaurant meals to just one day a week; “Long Walk Wednesdays,” and so on. Having an achievable motto for each day can keep things fun.
  • Set up cues and mini-rewards for yourself when you’re trying to weave a healthy habit into your routine. For example, if you’re forgetful about taking your meds but you love wearing jewelry every day, put a note in your jewelry box that says, “meds before bling.”
  • Tap into the PatientsLikeMe community! Join the site or sign in to access the following links. In the Mental Health forum, members have been tracking their daily goals together as a community for years. Consider adding to that thread, starting a similar one in your own condition forum or simply posting daily updates on the site to spell out what you’re hoping to accomplish today.

The “best” routine varies from person to person, but ultimately it involves a series of actions that have the potential to become automatic and (ideally) help you live better today. Think: autopilot.

What’s in your daily routine? Have you had success or trouble with getting into good routines? In this forum discussion (psst — join us or log in!), members are swapping ideas and offering support.

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