2 posts tagged “donor families”

Extending Boston’s Commitment to Organ Transplantation

Posted August 18th, 2010 by

Attending the National Kidney Foundation’s 2010 U.S. Transplant Games was an eye-opening experience.  And it wasn’t just the thousands of transplant recipients, living donors, and donor families who made the event so memorable.  It was the passionate commitment to transplantation by so many different individuals and organizations.

wallDozens of nonprofits, donor and support groups, and pharmaceutical manufacturers descended upon Madison, WI to meet those touched by transplantation and celebrate their stories.  An incredible number and variety of resources were offered by these organizations to drive donor awareness, support the needs of transplant recipients, and facilitate connections with others (see the photo of Novartis’ “Wall of Inspiration”).  The simple act of pin trading between two people often caused them to open up about their transplantation experience and what brought them to the Games.

As the founding sponsor of the Games two decades ago, Novartis continued to serve as the event’s lead sponsor and pledged its continued support in the future.  Other noteworthy pharmaceutical sponsors of the Games included Pfizer, Bristol-Myers Squibb, Astellas, and Genentech.  Together with Novartis, these organizations have invested many years and many millions of dollars developing the immunosuppressants that transplant recipients need to maintain the health of their organs.

Novartis also demonstrated its commitment to organ recipients last year by partnering with PatientsLikeMe to develop the Transplants Community.  Novartis wants to learn from this Community – just as patients learn from one another – what challenges patients face and what unmet needs can be addressed.  By partnering with patient-centric organizations like Novartis, PatientsLikeMe fulfills its mission of improving patients’ lives by discovering important research insights through shared patient data.

PatientsLikeMe is headquartered just outside Boston, which is coincidentally the city where the first successful kidney transplantation occurred more than 50 years ago.  We are proud to extend Boston’s long-standing commitment to organ candidates and recipients.

PatientsLikeMe member cfidyk


PatientsLikeMe Gets into the Spirit of the Transplant Games

Posted August 5th, 2010 by

The spirit of Team Mid New England and the U.S. Transplant Games has infiltrated PatientsLikeMe!  We have just gotten back from an amazing trip to Madison, WI to watch Team Mid New England take to the athletic fields and to spread the word about our transplants community at PatientsLikeMe.

nkfne_smWe had the opportunity to sponsor Team Mid New England at the Games. Their blue shirts were easy to spot in the crowds of more than 7,000 people.  They wore our logo on their backs and traded our pins to spread the word about PatientsLikeMe.   On Saturday, we were able to gather them all for this fantastic team photo.   (See all of our photos from the weekend here).

Their energy and excitement was contagious.  Check out this video of Team Mid New England marching into the Coliseum during Opening Ceremonies.

At the Transplant Games, transplant recipients, living donors, and donor families all come together to celebrate life and honor their loved ones.  They say they come for sport, but really they come to share their stories, to meet one another, and to be a part of something greater than themselves.  It’s not dissimilar at PatientsLikeMe where transplant patients can find patients like them, share their story, learn from one another, and contribute to research.

Listen to YellowIsJoy, a current transplant community member talk about her experiences at the Games and on PatientsLikeMe.  You can feel her energy and her appreciation after receiving 3 life saving kidney transplants.   She is making the most of her life and stresses the importance of choosing new adventures every day.

The athletes, donor families, and friends that comprise Team Mid New England were gracious, energetic, and wonderful cheerleaders for PatientsLikeMe.  Congratulations to the team for bringing home more than 20 medals!  Let’s make it 40 in 2012!

PatientsLikeMe member mcotter