3 posts tagged “daddytom”

Today’s Photo: Shake, Rattle and Roll

Posted August 10th, 2012 by

The heat isn’t letting up this summer – but that isn’t stopping our members from participating in disease-related walk/run events in their local communities.

For inspiration, please meet some of the members of Parkinson’s disease patient daddytom’s team, who joined together to raise money and show solidarity at a Shake, Rattle and Roll Run sponsored by the American Parkinson Disease Association in Texas.  From left to right are Connie, Paula, Dorothy and Larry (the latter wearing blue PatientsLikeMeInMotion t-shirts) as they triumphantly cross the finish line.

Daddytom's Team at the Shake, Rattle and Roll Run

Congrats to daddytom and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds and awareness for your condition. We’re honored to support you every step of the way.  For more PatientsLikeMeInMotion team photos, check out our growing Flickr collection.

Thinking about organizing a team for this fall?  Learn more about the PatientsLikeMeInMotion program today.


Tell the World: Visiting the Comal County Parkinson’s Support Group Symposium

Posted October 11th, 2011 by

I recently had a chance to speak about PatientsLikeMe at the 3rd Annual Comal County Parkinson’s Support Group Symposium, held in New Braunfels, Texas, on Saturday October 1, 2011.  Both the event and the support group were started by one of our longtime members, daddytom, who’s been part of PatientsLikeMe since 2007.  As daddytom said:

In July 2007 after much prodding from my bride…and my neurologist, I started the Comal County Parkinson’s Support Group. Thought I’d get it going then bow out after three or four months…Three and a half years later we have grown from six people to having over 160 folks registered with us…We have gone from meeting once a month to twice a month…What started as a laborious project has turned into a project of love.”

PatientsLikeMe Patient Experience Manager Kate Brigham (Center) with a Group of PatientsLikeMe Members

This year’s symposium featured presentations by two neurologists, Dr. Vikki Alvarez and Dr. Michael Merren, as well a presentation by a local speech pathologist. It was a great event to help educate and support Parkinson’s patients and their families in the Comal County area.

The audience included roughly 100 people, primarily Parkinson’s patients and their caregivers. I had a chance to meet a group of PatientsLikeMe members, and it was great to hear them talk about some of the ways they use PatientsLikeMe – as a support system, as a place to ask and answer questions from other ‘Parkies’ and as a resource for finding out more about what to expect as their Parkinson’s disease progressed.

What a great experience to meet some PatientsLikeMe members face to face.  While we can’t be at every support group meeting, we’ve produced some great materials to help you talk about PatientsLikeMe with your own support group.  Visit the Tell the World! page to find PatientsLikeMe flyers, slide decks and business cards.

PatientsLikeMe member kbrigham