2 posts tagged “cost”

Life with Parkinson’s Disease: What We’ve Learned

Posted December 15th, 2011 by

On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD).  Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members.

Age at Which Patients Experienced Their First Parkinson's Symptom

Taking a look at the makeup of our PD community, 52% are male, and 48% are female.  More than 98% identify PD as their primary condition, and just shy of 20% report experiencing their first symptom between the ages of 50 and 59.  Others report experiencing their first symptom anywhere from adolescence to their seventies.  (See the chart for a complete breakdown.)  What exactly are the symptoms of this condition?  Some of the most commonly reported include stiffness/spasticity, slowness, sexual dysfunction, memory problems, excessive daytime drowsiness and constipation.

As Steve’s interview revealed, Carbidopa-Levodopa (Sinemet) is one of the most commonly prescribed treatments for PD as it helps to control tremors, one of the most visible manifestations of the disease, and other movement dysfunctions.  Currently, more than 1,698 members report taking this medication, and 300+ of them have submitted Sinemet treatment evaluations, which review the drug’s effectiveness, side effects, dosage, cost and more.   Here’s what one patient writes about Sinemet on her evaluation:  “I notice my leg limp and motivation to walk improves dramatically when it kicks in. The tremor is much less.

Some of the Most Commonly Reported Treatments for Parkinson's, As Reported by PatientsLikeMe Members

Other commonly reported PD treatments include prescription medications such as Ropinirole (Requip), Pramipexole (Mirapex), Rasagiline (Azilect) and Amantadine; OTC supplements such as CoQ10; and surgical procedures such as Deep Brain Stimulation (DBS).  Click on the treatment name to see the data we’ve amassed for each, including hundreds of treatment evaluations submitted by our patients.

This is just a sample of the wealth of experience and data to be found at PatientsLikeMe.  Dive in today to learn more about PD.


Share your experiences with the antidepressant ADCO Mirteron

Posted January 22nd, 2011 by

ADCO Mirteron is an international brand of mirtazapine, a tetracyclic antidepressant that is used to treat depression and, in come cases, insomnia.  At PatientsLikeMe, where more than 115,000 patients are sharing their experiences with prescription drugs, supplements and more, we have just one patient who reports taking ADCO Mirteron while more than 300 patients report taking another branded or generic formulation of mirtazapine. (Other brand names include Remeron, Avanza, Zispin, Axit, Mirzaten and Rexer.)

What can we learn from these patients’ experiences?  Quite a bit, actually, thanks to PatientsLikeMe’s unique data-sharing platform.  For example, the most commonly reported dosage of mirtazapine is 15mg daily, the most commonly reported cost is “under $25,” and the most commonly reported side effects include weight gain, increased appetite and drowsiness.  153 of our patients have discontinued mirtazapine, with side effects, lack of efficacy and doctor’s advice among the top reasons cited.

Here are some highlights from the 130 treatment evaluations our patients have submitted for mirtazapine (the generic form of ADCO Mirteron):

  • “After trying almost every other depression med and mood stabilizer out there, this is the one that’s worked well for me. Wish I had found it sooner.” – Patient with major depressive disorder

 

  • “I take this medicine to help me sleep at night, but it also helps a bit with my depression and anxiety.” – Patient with fibromyalgia
  • “Works well, but leaves me a little sleepy or slow throughout the day. Need to make sure you get 8-9 hours sleep or the sleepy feeling stays with you all day.” – Patient with post-traumatic stress disorder (PTSD)
  • “Very hungry when taking this med. I take 30mg in the morning and by 2pm I have had my total daily allowance of calories!” – Patient with general anxiety disorder (GAD)
  • “When I was depressed, it was very effective and my body adjusted to the sedation effects. As my depression lifted, I experienced more and more difficulty in waking up.” – Patient with bipolar disorder
  • “I can see why other people can have problems with the constant drowsiness and increased appetite/weight gain, but for an anxious under-eating insomniac like me, it was ideal.” – Patient with major depressive disorder

JOIN PATIENTSLIKEME TODAY

Have you taken ADCO Mirteron – or another brand of mirtazapine?  Join PatientsLikeMe and add your experiences to our growing body of knowledge.  Then, stay for the support.  With nearly 30,000 members who report a mental health condition, we have a tremendous amount of discussion and activity in our Mental Health and Behavior Forum.  Chime in today.