7 posts tagged “chronic fatigue syndrome”

Canary in a Coal Mine- Raising awareness for myalgic encephalomyelitis

Posted October 28th, 2013 by

Everyday on PatientsLikeMe, people just like you are sharing their experiences, contributing to real-time research and raising awareness, together. Jen is part of your patient community and is living with myalgic encephalomyelitis (ME), sometimes called chronic fatigue syndrome. She’s working on a new project called Canary in a Coal Mine to help shed light on this largely misunderstood condition.

“Three years ago I became devastatingly ill. Now, there is not a single waking moment when I don’t feel sick. When faced with what seemed like an insurmountable obstacle, I felt the only choice I had was to transform suffering into grace. I believe that by telling these stories, by showing the world what it really feels like to live life with ME, we can change forever the way the world sees this illness. And, by showing the true face of ME, maybe we can put an end to the many injustices that ignorance creates.” –Jen


May 12th, International Awareness Day for Chronic Immunological & Neurological Diseases

Posted May 12th, 2013 by

Did you know that May 12th was chosen for International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) because it’s also Florence Nightingale’s birthday? She was a statistician, social reformer and is credited as the founder of modern nursing. It’s also believed that she suffered from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). That’s just one of the several conditions highlighted on International Awareness Day. Some others are…

May 12

May12.org is hosting a 2013 Awareness campaign on their Facebook page that you can participate in right from home. They’re also encouraging everyone to help spread the word by calling local representatives and asking family members to participate.