caregiver

“I feel it needs to be told”: Member Cathy shares a memory

Last year, we spoke with Cathy (Catrin) about her experience transitioning into a caregiver role for her husband, Fred, who was living with bulbar onset ALS. Shortly after that, Fred passed away, and to mark the year of his passing, Cathy recently shared the following memory. Here’s what she had to say… “I have been

“I feel it needs to be told”: Member Cathy shares a memory Read More »

“Hope makes us strong.” Cathy opens up for National Family Caregivers Month

Are you a caregiver or do you know someone who cares for a loved one? For National Family Caregivers Month, we caught up with Cathy (Catrin), who became a caregiver for her husband after he was diagnosed with bulbar onset ALS in January of 2015. As she learns to manage the dual roles of wife

“Hope makes us strong.” Cathy opens up for National Family Caregivers Month Read More »

Steve Saling’s patient-conceived ALS project

Steve Saling (SmoothS), a longtime ALS member of PatientsLikeMe, has made it his mission since diagnosis to help other pALS live a better quality of life. He’s founded the ALS Residence Initiative, which has grown from the first fully-automated, vent-ready ALS Residence in Chelsea, Mass., at the Leonard Florence Center for Living, to multiple residences across the

Steve Saling’s patient-conceived ALS project Read More »

Patients as Partners: Gus and Maria talk partnering with your caregiver

The 2015-2016 Team of Advisors recently introduced the Partnership Principles. They’ve been sharing personal stories about these principles in action to kick-off conversations on partnering with all sorts of people — medical students, clinical trial coordinators, and “normals.” Today, Team of Advisors member Gus along with his wife and caregiver, Maria, share about their special relationship and how

Patients as Partners: Gus and Maria talk partnering with your caregiver Read More »

2016 National Compassionate Caregiver of the Year Award now accepting nominations

A warm smile. An assuring word. A difficult message delivered with empathy. Has a doctor or other healthcare professional ever made a difference in your life? If you know someone who embodies compassionate care, our partners at The Schwartz Center for Compassionate Healthcare want to hear about it. Their National Compassionate Caregiver of the Year (NCCY) Award

2016 National Compassionate Caregiver of the Year Award now accepting nominations Read More »

ALS Blog: “Hope makes us strong.” – An interview with ALS caregiver Cathy

Meet Cathy (Catrin), who became a caregiver for her husband after he was diagnosed with bulbar onset ALS in January of 2015. As she learns to manage the dual roles of wife and caregiver, she has turned to the PatientsLikeMe community for help, encouragement and hope. We took time to connect with her recently and

ALS Blog: “Hope makes us strong.” – An interview with ALS caregiver Cathy Read More »

Natalie shares her story as caregiver for her mother with Alzheimer’s disease

When was your mom diagnosed with early-onset Alzheimer’s disease? What was your mom’s diagnosis process like for you, for your mom, and for the rest of your family and friends? My mother, Maxine, was diagnosed with early-onset Alzheimer’s disease in April of 2010. She had been living on her own for about one year, following her

Natalie shares her story as caregiver for her mother with Alzheimer’s disease Read More »

Joining the effort to find answers from brain diseases and injuries

In honor of Veterans Day, we wanted to share two stories from our partner, One Mind. First, the story of retired Colonel Gregory Gadson, who was wounded during his military service and was living with post-traumatic stress (PTS). PTS affects more than 7.7 million Americans each year. The second video shares the story of Roxana

Joining the effort to find answers from brain diseases and injuries Read More »

Scroll to Top