Our Openness Philosophy is centered around the idea that patients sharing their real world health data allows for collaboration on a global scale; that it will accelerate new treatments; and that it can change our health care system. In this same spirit of openness, The Myelin Repair Foundation (MRF) has recently announced a new collaborative event.
This fall MRF is inviting scientists, industry experts, patients, policy makers, and other big thinkers inside and outside of the medical research enterprise and health care industry to two online “idea sourcing” events called “Breakthroughs to Cures”. These events are designed to explore creative ways to accelerate the pace of medical research and shorten the time to market for new medicines for all diseases.
The two events will take place respectively on October 7-8 and November 9-10 and there will be as many as 600 individuals from a wide range of backgrounds in online conversation threads that are expected to identify new strategies for accelerating research. Here is a chance for patients to come to the table, contribute your ideas, your experiences with illness, and your sense of urgency to the discussion. If you’d like to learn more and register for the events, visit “Breakthroughs to Cures”.
At PatientsLikeMe, we believe that real world data sharing helps drive research, helps patients make treatment decisions, and improves patient relationship with doctors. The results from our user survey indicate that many members of PatientsLikeMe agree the site has helped them to understand side effects of their treatments and has helped them find another patient with experience of taking a specific treatment for their condition. In fact, 65% of patients feel they are more involved in treatment decisions because of what they learned on PatientsLikeMe.
We believe, given this power, patients have the ability to affect a huge change in the medical system. Make your voice heard by participating in one or both of these unique online events.
It’s your data, your ideas, your experience, your future – share on.