3 posts tagged “anniversary”

PatientsLikeMeInMotion™ 2015: Celebrating 7 years of PatientsLikeMe members giving back to their communities and raising awareness

Posted May 11th, 2015 by

For those of you who don’t know, our PatientsLikeMeInMotion™ program has been running since 2009—how time flies! Join us in celebrating our 7th year with a recap of 2014, our biggest year so far!

Last year, we had the honor of supporting 2192 members across 32 states that participated in a range of events and had a lot of fun along the way! Some of the events included a motorcycle ride, a golf tournament, a MuckFest, a Halloween Run and Relay, and a Cake Sale to boot!

If you’re unfamiliar with how it works, check out our guidelines – we sponsor 3-star members (super health data donors) who form teams and fundraise with their local nonprofits. And these advocates receive a donation, free team t-shirts and more! Here’s what some members had to say:

“Advocacy is huge, because without voices out there speaking on our behalf, we would never get any funding or support.”

“It is thanks to these fundraisers that there are now therapeutic options for patients like us. When I was first diagnosed, there was NOOOOOOOOOOOOOOOOOOOTHING. While there is still no cure, we have evidence that research is making strides and there is greater reason to hope. I have always been so grateful for the generosity of the PLM program. I feel so fortunate every time my family and I can contribute, to the financing of research for the cure.”

Quick facts:

More than 2,100 members from 113 different teams raised close to $24,000 through the PatientsLikeMeInMotion™ program in 2014.

Events took place in 32 states:

And represented 28 disease communities:

Thanks to everyone who participated in 2014! If you’d like to join the program in 2015, here’s all you need to do:

  1. Join PatientsLikeMe (it’s free!)
  2. Get 3 stars (your profile is up-to-date)
  3. Submit your team details (within 3-4 weeks notice of the event, please!)

Share this post on Twitter and help spread the word.


A decade of psoriasis awareness

Posted October 28th, 2014 by

Today marks the ten-year anniversary of World Psoriasis Day, a day with four goals: raise awareness for the condition, improve access to treatment, increase understanding of known information and build unity among the global psoriasis community.

And after ten years of raising awareness, it’s time to step it up a notch. Tomorrow, the International Federation of Psoriasis Associations (IFPA) is going to create a tidal wave of awareness on social media with their “Thunderclap” campaign. Join in here or click the sidebar on the right. When you join the movement, a World Psoriasis Day message will automatically be posted on your Facebook, Twitter or Tumblr account at 12:00pm Central European Time (7:00am on the east coast). You can share your own message with the #psoriasis and #WPD14 hashtags as well.

Check out some of our past posts on psoriasis, including the results of our “Uncovering Psoriasis” surveys, patient interviews (with Maria, David and Erica) and what doctors Jerry Bagel and Steve Feldman had to say about psoriasis. And if you’re living with psoriasis, don’t forget to connect with the community at PatientsLikeMe – more than 4,800 people are sharing their experiences and stories with each other.

Share this post on Twitter and help spread the word for psoriasis.