ALS advocate

How Social Media Helped Me Adjust to My New Life: An ALS Patient Essay

2 Comments / ALS / By

Want to connect with and learn from others with ALS? Join PatientsLikeMe Now! (It’s free) “Social media is the MOST important means of socialization, communication and education for patients and their caregivers today, particularly with a disease like ALS where our minds are still sharp and active inside our failing bodies.  Sites like PatientsLikeMe, Facebook […]

How Social Media Helped Me Adjust to My New Life: An ALS Patient Essay Read More »

Meet ALS “Treat Us Now” Steering Committee Member Tom Murphy

3 Comments / ALS / By

You may remember our interview with ALS advocate Debra Quinn from last fall.  Today, we’d like to introduce you to another ALS patient activist in our midst:  Tom Murphy, a PatientsLikeMe member since January 2011.  As part of the ALS Treat Us Now nonprofit group, Tom and several other ALS patients around the country have

Meet ALS “Treat Us Now” Steering Committee Member Tom Murphy Read More »

Scroll to Top