#24DaysofGiving Archives |

Ryan and Emma’s stories: Make-A-Wish® Massachusetts and Rhode Island

Last December, patients like you came together to donate more than 476,000 health data points, including nearly 30,000 treatment reports and close to 120,000 symptom reports. The data that everyone selflessly donated has a heartbeat that will keep on giving – helping other patients like you and accelerating research. And because you helped us reach […]

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You helped us reach our goal for #24DaysofGiving!

Conditions, Patient Experiences / By patientslikeme

That’s right, you did it again! A big thank you to the PatientsLikeMe community for helping us reach our #24DaysofGiving goal for the second year in a row. Together, you donated 476,243 health data points! We’ll be making a $20,000 donation to Make-A-Wish® Massachusetts and Rhode Island to help fund life-affirming wishes for seriously ill

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Your data doing good: Our collaboration with the FDA

Conditions / By patientslikeme

During #24DaysofGiving this December, we’ve been highlighting all the good your health data is doing. For this one, we wanted to share more about how the data you donate is the centerpiece of a new collaboration between PatientsLikeMe and the Food and Drug Administration (FDA). Even after a new medication or treatment makes it through

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Your data doing good: The Lithium study

3 Comments / ALS, Conditions, Research / By patientslikeme

During #24DaysofGiving this December, we’re highlighting all the good your health data donations are doing. And this time, we’re starting at the beginning. As you probably know already, PatientsLikeMe launched its first community in 2006 for people living with ALS, also known as Lou Gehrig’s disease. Two years later, we had an amazingly engaged and

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At the #24DaysofGiving halfway point, you can help get us to our goal!

Conditions / By patientslikeme

Just a couple of weeks ago we recognized #GivingTuesday, a day to celebrate generosity. But this idea of giving back isn’t just about one day – it’s bigger than that. We’re asking you to re-think what it means to give back by donating your health data this December for what we call #24DaysofGiving. And right

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Christel’s story

Conditions, Diabetes / By patientslikeme

Last month, we introduced Christel, a member of your 2015-2016 Team of Advisors living with type 1 diabetes. Here she talks about the important role peer support has played in her journey. Here’s her story: You can see how much good data can do. During the month of December, we’re celebrating #24DaysofGiving. Any data

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Gus’s story

ALS, Conditions / By patientslikeme

Last month, we introduced Gus, a member of your 2015-2016 Team of Advisors living with ALS. Here he talks about his hope that the data he donates will help not just one person – but many. Here’s more of his story: You can see how much good data can do. During the month of

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Your data doing good: The POEM Study

Epilepsy, Patient Experiences, Research / By patientslikeme

When you share your health data, we all learn Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good,

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Your data doing good: The Fitbit study

Conditions, Research / By patientslikeme

When you share your health data, we all learn During #24DaysofGiving this December, we’ll highlight some of the most important things we’ve learned from data that members have selflessly shared, and all the good data donation is doing. One example is the Fitbit study we partnered with Biogen on earlier this year. Nearly 250 members

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Allison’s story

Bipolar disorder, Conditions / By patientslikeme

Last month we introduced Allison, a member of your 2015-2016 Team of Advisors living with bipolar II. She recently opened up in a video about how sharing her data on the site helped her recognize when she might have an episode, and partner better with her doctor to prevent new episodes from happening. You can

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