ALS Symposium 2008: A history of ALS online

Posted January 5th, 2009 by

Back in November, Jamie Heywood and I attended the 19th International ALS/MND Symposium in Birmingham, UK.  As part of an ongoing series of blog posts reporting from that conference, I have put together a narrated slideshow which is an abridged version of a platform presentation I was asked to give at the conference about the past, present, and future of the internet for patients with ALS/MND.

As you will see in the presentation, there has been a strong online presence in the ALS/MND world since the early 1990s. Over time, the proportion and representativeness of the patients participating has increased dramatically, to the point that we now have some 10% of the USA’s ALS/MND population registered on the site.

Next up in our series…a blog post looking at some of our recent improvements to PatientsLikeMe for people living with ALS/MND.

PatientsLikeMe member pwicks


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