Putting Psoriasis on the Map for World Psoriasis Day

Today, October 29th, is World Psoriasis Day, sponsored by the International Federation of Psoriasis Associations.  Here in the US, the National Psoriasis Foundation has created a special website – WorldofPsoriasis.com – for the occasion that illustrates the global nature of this chronic autoimmune disease, which affects 125 million people worldwide or nearly three percent of the world’s population.

WorldofPsoriasis.com's Interactive Map of Psoriasis Patients Around the Globe.  Click Each Red Pin to Find Stories, Photos and Videos.

Now those living with psoriasis and psoriatic arthritis can “get on the map” by adding a clickable pin for their location that shares their personal stories and photos.  The goal is to get psoriasis patients everywhere to proclaim “I have psoriasis” while also learning about others like them around the globe, such as Arvin O. Ravalo from the Phillipines, Saraswati Gautham from Nepal and Dr. Andres Felipe Jiminez Morales from Columbia.

What are the physical and emotional challenges of psoriasis?  Earlier this year, PatientsLikeMe interviewed four members who are blogging about life with psoriasis in order to shed light on this highly visible and often misunderstood disease, which affects as many as 7.5 million Americans and is the most common autoimmune condition in the US.  Check out our insightful interviews with:

  • Lissa of “Psoriasis Girl’s Point of View”
  • Alisha of “Being Me in My Own Skin”
  • Jessica of “Jessica and Psoriasis”
  • Joni of “Just a Girl with Spots”

Common Psoriasis Symptoms Reported by PatientsLikeMe Members.  (Click Through to See the Full PatientsLikeMe Condition Report.)

These four brave ladies are just the tip of the iceberg, however.  2,470+ patients are sharing their experiences with psoriasis at PatientsLikeMe – including how it affects their quality of life and what percentage of their body is affected – while 840+ patients are sharing about their psoriatic arthritis as well.  Get to know our growing psoriasis community and check out the results of our recent psoriasis patient survey about the impact of summer weather.  Also, don’t miss our upcoming blog post about the five different types of psoriasis!

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4 thoughts on “Putting Psoriasis on the Map for World Psoriasis Day”

  1. Pingback: Today’s Links | Kidney Citizen

  2. I have noticed china has almost no cases reported. Either the chinese don’t know about the map or something is going on there..

    One thing to note. China has among the lowest consumption of milk in the world.

    After the past 2 hours researching this fact, there does seem to be a global trend of dairy consumption, lactose intollerence and psoriasis. It doesn’t add up perfectly and psoriasis is a complicated condition that can have several causes, but this note should be taken into serious thought.

    good luck to all.

  3. All began in now very distant 1961 when I for the first time met my future wife. She had serious plaque psoriasis from her 9 yo. When we some times passed that exclusive circle – clinics, drs, hosps, etc we in time understood that at that circle she doomed to go all the rest her life. From nowhere to wait any help. But to live with that condition of skin was impossible. We hadn`t another go out from those situation as to seek meds ourselves. At that time we had 20 yo and without experience in that field. Our work took us 15 yrs of our life. Especially was difficult time after 1966 when she born first child. Her skin at 90% covered by p. In those yrs she was untouchable in society. It is sufficient to say that some time in summer people denied take money from her hands. But our many yrs work passed not in vainly. In 1977 after 25 yrs illness we cured p once and for all. Last 21 yrs I annually cured some patients.
    Naturally enough that for everyone reader interesting to know what I make from my preparations. All I make from many various plants ahd its consist from extract for wet heat, extract for drink, extract for breathe and ointment. My many yrs knowledge of life showed that preparations not give any side effects and disease never renew. Time for finally cure P depend on from form of p, it dangerous, age of patients and general condition of they health but never more than two months. But I cure only those patients that meet my demandes.If someone wish more information feel free at pneved@gmail.com
    And the last. I wish to public article at that theme but it not ready now for public. It may be in 2014 or even in 2015. All depend on from some sircumstances.
    With all best wishis for your success.

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