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It’s Rare Disease Day!
Interview with Gracie (Devic’s NMO Patient)

Today, we’re joining the National Organization for Rare Disorders (NORD) to help raise awareness for Rare Disease Day.  In recognition of the day, we recently interviewed Gracie, a valued member of our Devic’s Neuromyelitis Optica (NMO) community. Devic’s NMO is a rare autoimmune inflammatory disorder which affects the optic nerve and spinal cord and is …

It’s Rare Disease Day!
Interview with Gracie (Devic’s NMO Patient)
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Harnessing New Media for Patient Advocacy (Part II)

A few weeks ago, I was invited to present on behalf of PatientsLikeMe at the Arthritis Foundation workshop held in Newport, RI.  The presentation was on how to “harness new media for patient advocacy” – the same as what I presented at a workshop for non-profits in northern New England in August.  This time the …

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