Search Results for: parkinson's

What products help people live better with Parkinson’s disease? A room-by-room round-up

Conditions, Parkinson's Disease, Patient Experiences / By

Over the years, PatientsLikeMe members living with Parkinson’s disease have discussed a lot of products and ideas for living better with PD. From kitchen knives and eating utensils to shoe horns and shoelaces, we’ve compiled a list of tools you’ve talked about for (almost) every room in the house and many different aspects of life. […]

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World Parkinson’s Day: Meet Eileen, a PatientsLikeMe researcher with a passion for PD

Conditions, Parkinson's Disease, Patient Experiences / By

Today is World Parkinson’s Day, and 2017 marks the 200th anniversary of the identification of Parkinson’s Disease (PD). Meet Eileen Mack Thorley, a research scientist with a passion for PD research. By day, she works on a variety of research projects at PatientsLikeMe. On her own time, you might find her doing FaceTime with her

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PatientsLikeMe and Dr. Max Little Team Up to Advance Parkinson’s Research Through the Patient Voice

Parkinson's Disease, Research / By

TED Fellows Call on Parkinson’s Patients to Help Screen, Monitor Disease Progression CAMBRIDGE, Mass. — December 3, 2012 —Today, Paul Wicks Ph.D., director of research for PatientsLikeMe, and Max Little, Ph.D., founder of the Parkinson’s Voice Initiative (PVI), kick off a partnership to advance Parkinson’s disease (PD) research through the sound of the patient voice.

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Tell the World: Daddytom Shares His Experiences with Parkinson’s

Parkinson's Disease / By

To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.”   We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about

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Tell The World: Parkinson’s Patients are “In Motion”

Parkinson's Disease / By

The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country.  It’s exciting to see our members are as active offline as they are online about raising awareness of their condition.  The PatientsLikeMeInMotion program

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2010 Parkinson’s Awareness Month:
Interview with EnglishTutor

Parkinson's Disease, Patient Experiences / By

What better way to kick-off 2010 Parkinson’s Awareness Month than to bring you “the patient voice.”  At PatientsLikeMe, we believe in getting to know the person, not just the “patient.”  That’s why we interview patients each month in our newsletter to find out more about how they approach life.   We recently featured englishtutor, a

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PatientsLikeMe Teams Up with 23andMe to Help Parkinson’s Patients

Parkinson's Disease, Patient Experiences, Research / By

Despite some recent happenings in the news, we’re here to assure you that health 2.0 is still very much alive.  Here’s our recent announcement about our new partnership with 23andMe. ————– PatientsLikeMe, the first community-based personalized medicine platform for people with life-changing conditions, and 23andMe, the world’s leading personal genomics company, announce a partnership today

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PatientsLikeMe at 2009 Parkinson’s Unity Walk

4 Comments / Parkinson's Disease, Patient Experiences / By

PatientsLikeMe was once again a proud sponsor of the 15th Annual Parkinson’s Unity Walk, held in New York City on Saturday April 25, 2009. On a gorgeous but hot day in Central Park, Jeana Frost, James Kebinger and I (Maureen Oakes) joined thousands of walkers and sponsors in raising more than $1.2 million for Parkinson’s

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