We’ve been learning about how connected our patients are this week in our blog series called “One for All.” In the first two blogs by Jeff Cole, we read (and saw through cool graphics) how some of our members are initiating an unparalleled universe of dialogue. Today, we sit down with one of those members, […]
One for All: Interview with Diamondlil58 (Welcomer of 15k Patients) Read More »
In yesterday’s post, we looked at some of the ways members of the PatientsLikeMe community are connecting with other patients and the value they are getting from it. Today, we’ll highlight how one person can make an enormous difference and inspire you with her ability to connect with others. One method of reaching out to
One for All: The PatientsLikeMe “Welcome Wagon” Read More »
PatientsLikeMe is dedicated to building a platform for the open sharing of personal health data. So far, our community of patients have shared over 600,000 outcome surveys, 300,000 treatment histories, and 2.3 million symptom reports. We believe this enormous collection of health data will dramatically improve how patients manage their conditions. But there are more
One for All: The Connected Community of PatientsLikeMe Read More »
Accidents happen, anywhere to anyone. Whether it’s from playing soccer or football, snowboarding, riding a bike, competing in synchronized swimming, slipping on ice or falling off of a ladder. In sports, even with the best safety procedures in place, there are still accidents. That’s why our partners at One Mind have started the #TreatBrainsBetter campaign.
From our partners at One Mind: Zack Lystedt’s football story Read More »
It’s no secret that here at PatientsLikeMe, we think that the voice of the patient — your voice — is the number one way to drive medical advancements. At TEDMED 2013, our very own Sally Okun shared that message on one of the world’s largest stages. She asked the audience a very simple question. “Does
Have you ever been doing something you really enjoy, like spending time with a loved one or playing your favorite game and felt overwhelmed with happiness? Or maybe you’ve experienced the opposite, where you felt down for a few days or weeks? Have you had difficulty falling asleep? Or experienced stomach cramping and bloating after
How Is Serotonin Actually Linked to Chronic Disease Read More »
Living with rheumatoid arthritis (RA) is more than joint pain. It’s a chronic pain, accompanied by many other symptoms, that often gets worse over time. Symptoms can come at inconvenient times without any warning which makes them difficult to manage. But what people think RA feels like and what it actually feels like are often two different things. How does rheumatoid arthritis really feel? Rheumatoid arthritis isn’t “just” arthritis. When you have RA, it affects your body or one part of
What Does Rheumatoid Arthritis Really Feel Like? Read More »
Now that the holidays are here, many of us have started looking for the perfect gift to give to our loved ones. Finding the right gift can be hard. But when you are trying to buy a gift for someone with a chronic illness, it may be even harder. Chronic illnesses are persistent or long-lasting
9 Gift Ideas for Someone Living with Chronic Illness Read More »
The Center of Disease Control reports that six in ten adults in the United States have a chronic illness, like multiple sclerosis, ALS, diabetes, kidney disease, and major depressive disorder. Because chronic illness is so common, it’s likely you have a friend, parent, co-worker, or maybe even you, have one. Chronic illnesses can be tricky
10 Things Not to Say to Someone with Chronic Illness Read More »
Roller coasters, water slides, tilt-whirls, and Ferris wheels are all exciting ways to spend your summer afternoon, but when you use a wheelchair, these options might not be accessible to you. This does not mean that you should cancel your next trip to a theme park. In fact, The American Disabilities Act has set an
4 Theme Park Tips for Physically Disabled People Read More »
