Search Results for: Parkinson's Unity Walk

PatientsLikeMe at the Young-Onset Parkinson’s Network Conference

1 Comment / Parkinson's Disease, Research / By

PatientsLikeMe was a proud sponsor of the National Parkinson’s Foundation Young-Onset Parkinson’s Network (YOPN) Conference in Atlanta, GA last week. The event, coordinated by and for people living with Young-Onset Parkinson Disease (YOPD), was a huge success. Paul Wicks and I (Maureen Oakes) enjoyed working at the booth, meeting many of our current members and […]

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Observing Parkinson’s Awareness Month

2 Comments / Parkinson's Disease / By

Since 2010, April has been designated as Parkinson’s Awareness Month by the US Senate.  The goal is to shine a spotlight on the national impact of Parkinson’s disease (PD), which affects more than one million Americans.  A progressive disorder of the nervous system, PD is often marked by muscle tremors, muscle rigidity, decreased mobility, stooped

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Today’s Photo: Uniting for Parkinson’s

Parkinson's Disease / By

Please meet Parkinson’s disease (PD) patient Judith, who led a PatientsLikeMeInMotion-sponsored team at the Parkinson’s Unity Walk in New York City last April.  Held annually in Central Park, this massive grassroots event donates 100% of funds raised to PD research. Congrats to Judith and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds

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Listen Up! Here Comes The Patient Voice

1 Comment / Organ Transplants, Parkinson's Disease, Patient Experiences / By

In addition to hearing from you through our PatientsLikeMe newsletters, we sometimes get a chance to meet you in person to hear what you have to say about living with your condition.   Here are two videos highlighting interviews we conducted in 2010 with patients just like you.  In the first video, you’ll hear directly

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Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)

1 Comment / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Patient Experiences, Rare Diseases / By

Why does it feel like “second nature” for PatientsLikeMe to create innovative partnerships with nonprofits?   Nonprofit organizations are dedicated and centered around putting patients first – a concept that’s near and dear to us too.  In 2010, we focused on refining our nonprofit partnerships to bring more events and programs to patients, both online and

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Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)

2 Comments / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Rare Diseases / By

With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network.  Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice.  To that end, our job in marketing is to share your stories and tell

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Flickr-ing PatientsLikeMeInMotionTM

1 Comment / ALS, Chronic Fatigue Syndrome, Epilepsy, Fibromyalgia, HIV/AIDS, Mental Health, Multiple Sclerosis, Organ Transplants, Parkinson's Disease, Rare Diseases / By

Ever wonder what your fellow members were up to on their sponsored walks and runs in various states across the country? Last week, PatientsLikeMe launched a Flickr page for the PatientsLikeMeInMotionTM program. Now you can see photos of members just like you in motion!   We are excited to share the experience of sponsored teams and

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5 Stages of Parkinson’s Disease and How to Treat Them 

Parkinson's Disease, Patient Experiences / By

Parkinson’s Disease is a progressive disease, meaning the symptoms develop slowly over the course of several years. Although there are four main motor symptoms that occur with Parkinson’s, not every patient will experience symptoms in the same order and in the same way. However, there are patterns of symptom progression that most patients will experience.  The

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Can dogs detect disease? Studies say…

Parkinson's Disease / By

Can “Spot” spot cancer, diabetes, Parkinson’s disease and more? We’ve rounded up some of what the initial research shows so far — and it’s not just fluff. “The full potential of dogs to detect human disease is just beginning to be understood,” says Claire Guest, chief executive of a U.K.-based organization called Medical Detection Dogs, which trains

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The benefits of just a bit of exercise (+”forest bathing”?)

Bipolar disorder, Conditions, Depression, Mental Health, Patient Experiences, PTSD / By

If frequent, long workouts aren’t in the cards, here’s some good news: A new research analysis based on decades’ of studies shows the potential mental health perks of even just a smidgen of light exercise. Also, see the results of a Japanese study on something called “forest bathing.” Exercise linked to good vibes “Even a Little Exercise

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