Search Results for: "a day in the life"

A Day in the Life of PatientsLikeMe Product Manager Maureen Oakes

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments.  So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton,  Research Scientist Timothy Vaughan and Biz Dev’er Arianne Graham.  Today we’d like to introduce you to Product Manager Maureen Oakes, or as she’s affectionately known around the office, “Mo.” 1.  You’re the Product Manager at PatientsLikeMe.  Tell us what that involves. A little bit of everything! I read in an article that product managers are like “embedded CEOs” because you drive the core decisions to improve and change the product, which in this case is the PatientsLikeMe website. That means different things depending on the circumstances. Sometimes my job is getting all the right people in the room to make a decision, and sometimes it is making a decision myself. In all cases, it involves listening, asking good questions, weighing all the options and following up to make sure what needs to get done actually happens. Each day I split my time between planning ahead for enhancements we could make to the site in the …

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A Day in the Life of Biz Dev Team Member Arianne Graham

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments.  So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton and Research Scientist Timothy Vaughan. Today we hear from Arianne Graham, a Harvard MBA graduate who joined the business development team in 2010.  What current project is she most excited about?  And how is working at PatientsLikeMe different than her previous healthcare jobs?  Find out that and more in our interview. 1.  What’s it like to be part of the business development team? When spending time with friends and family or even meeting new people, I’m always excited to answer that small talk question: “What do you do?” I happen to think I have the best job ever. As part of the business development team here at PatientsLikeMe, my colleagues and I work with everyone who cares about patients (including providers, researchers, pharmaceutical companies, insurance companies, pharmacies, and many more!). We look at how the real-world data shared by our members can transform their businesses for the benefit of patients everywhere. Sounds like fun, right? …

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A Day in the Life of PatientsLikeMe Research Scientist Timothy Vaughan

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments.  So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava and Office Manager Alison Dutton.  Today we hear from Research Scientist Timothy Vaughan, who earned his PhD in physics before deciding to focus his simulation and modeling skills on medical questions. 1.  What research projects are you working on at the moment? I am working on a few different things. My primary focus recently has been on modeling multiple sclerosis (MS). As just about anyone with the disease can tell you, MS is a highly complex, highly variable illness. To even get a good description of the experience of a patient is a challenge. As one of the “mathy” people at PatientsLikeMe, my job is to try to make the description as systematic and quantitative as possible, because mathematical relationships are often the best tools in trying to solve the underlying puzzle of what the body is doing. So, for example, I have recently been looking at some of the ways that symptoms and the Multiple Sclerosis Rating Scale (MSRS) …

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A Day in the Life of PatientsLikeMe Office Manager Alison Dutton

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments.  So far, we’ve featured people like User Experience Engineer Cris Necochea and Research Assistant Shivani Bhargava.  Today, we share our interview with Office Manager Alison Dutton, who’s been keeping things running smoothly – and hilariously – for the past two years.  Find out what we learned from Alison about life at the epicenter of a startup. 1.  What’s it like being the Office Manager of a growing startup? I have heard this particular question many times before and each time I give a different answer – all depending, of course, on how the previous day has ended. It can be incredibly exhilarating and at the same time exhausting mentally as well as physically. The important thing to note is that it’s never, ever dull. Although this can be said for most positions in a startup, for me, I relish the spontaneity and craziness that ensues on a daily basis. I have had experiences with established companies that had more of a corporate culture. It is Groundhog Day all over again. Since …

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A Day in the Life of Research Assistant Shivani Bhargava

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments.  So far, we have profiled Research Scientist Mike Massagli and User Experience Engineer Cris Necochea, and today, we share our interview with Research Assistant Shivani Bhargava.  Unlike Mike and Cris, who are both company veterans, Shivani offers the perspective of a more recent hire.  Find out what it’s been like for her to jump in and start her career with our team. 1.  What convinced you to join PatientsLikeMe? I was recruited right out of undergrad in the Spring of 2010. I was just beginning my job search and a previous employer pointed me to this fantastic startup in Cambridge, MA. It took five…maybe ten minutes to fall completely in love with the website and realize I wanted to help contribute. I really liked the idea of a completely unique healthcare company that was using a creative business model to actually improve healthcare by putting the patient voice first. After two interviews, in which I’m almost positive Paul Wicks and Sally Okun took pity on my bumbling college student enthusiasm, …

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A Day in the Life of PatientsLikeMe User Experience Engineer Cris Necochea

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments.  Last month, we featured an interview with Research Scientist Mike Massagli, PhD, and today, we share our interview with User Experience Engineer Cris Necochea, who holds the distinction of being the very first PatientsLikeMe employee.  Find out what convinced him to join PatientsLikeMe as a fledgling start-up…and why he’s stayed for the long haul. 1. You’re a User Experience Engineer at PatientsLikeMe. Tell us what that involves. At PatientsLikeMe, we use a methodology called Agile Scrum, where our focus is on the quick turnaround of short, attainable goals, usually in a two-week period. It’s fast-paced and never boring. Our engineering team is made up of around 10 Engineers, a Product Manager, a Designer and two User Experience Engineers, all under the direction of our Director of Engineering, Steve Hammond. My focus is on translating the visual designs into a usable and accessible user interface. However, at PatientsLikeMe, we all have a lot of shared responsibility for driving the direction we take with the user experience. Given our short cycles …

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A Day in the Life of PatientsLikeMe Research Scientist Mike Massagli

What’s it like to work at PatientsLikeMe?  We’ll be revealing just that with our new blog series “A Day in the Life,” which features various employees from different departments.  To start this new series off with a veteran perspective, we interviewed Research Scientist Mike Massagli, PhD, one of the longest tenured employees of the company.  Find out what changes he’s witnessed since joining PatientsLikeMe in June 2007. 1.   What’s it been like to watch the company evolve over the last four years? It has been both interesting and gratifying.  Interesting to watch how we evolved from our initial communities – ALS, MS and Parkinson’s, all essentially neurological conditions – to come to grips with other types of chronic disease and to try and achieve a necessary balance between general tools that would be useful to any patient and disease- or condition-specific tools that will be relevant to patients when they are needed.  What has been gratifying is that we have always been able to find people to rise to these challenges.  We’ve found users of PatientsLikeMe very willing to help (and forgiving when things haven’t gone perfectly smoothly), so that we are now in a position to provide all patients …

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Patients as Partners: An open letter from Craig to the “normals”

We’ve been hearing from members of the Team of Advisors about how they’ve used the Partnership Principles in their health journeys. For Craig (woofhound), who’s living with fibromyalgia, it’s important to forge strong relationships with “normals,” or people who don’t know what it’s like to live with a chronic condition. By talking openly about illness, Craig believes, we can bring about more compassion and understanding for patients. Below, Craig illustrates the need for open, honest partnerships with “normals” in an open letter, dispelling some misconceptions and vividly describing a day in the life of someone with fibromyalgia. What You Don’t Know About Your Friend’s Fibromyalgia So, someone you know (and possibly love) has told you they have fibromyalgia. With all of the medical information available today and A-list celebrities like Morgan Freeman announcing that they have it, most people have an idea of what this disorder is. I’d like to help with that understanding by telling you about the things you probably DON’T know about this very complex condition. Let’s begin by listing some of the famous people you may know who have fibro. Susan Flannery, Sinead O’Conner, Michael James Hastings, Frances Winfield Bremer, Morgan Freeman, Mary McDonough, Janeane Garofalo and AJ …

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“Sharing has given me support” – PatientsLikeMe member Debbie opens up about her MS

As PatientsLikeMe member Debbie (chilli123) says, it’s a very private decision whether or not to discuss MS openly. But as you’ll read, she’s doing more than just speaking about her MS – Debbie is spending time with others so they can better understand what life with a chronic condition is like. Debbie also talked about what it’s like to be a mom living with MS, her volunteer work with Penn’s LEAPP program and the inspiration behind her MS blog Adaptolution. Read on for her full interview. A lot of MS members have shared that finding a diagnosis isn’t always easy – what was your experience like? For the first eight years of living with MS, the disease was not visible to those around me. However, I have not shied away from discussing my disease. If I can educate one more person about life with a chronic illness, then I could make someone else’s struggle just a bit easier because they will be encountering people who understand. Everyone around me has been supportive. It is a very private decision whether to discuss MS openly – for me, it has allowed others to come into my world a little more and chronic …

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Uniting for World Diabetes Day and American Diabetes Month

Diabetes is one of the most widespread conditions in the world.1 Globally, more than 370 million people are living with diabetes, including over 25 million in the United States alone.2 And throughout November, the American Diabetes Association (ADA) will raise awareness about everything diabetes, from risk factors and genetics to proper diet and blood sugar testing. The International Diabetes Federation (IDF) has also named today, November 14th, World Diabetes Day, and now is the time to start sharing your experiences with both type 1 and type 2 diabetes. Diabetes mellitus sometimes gets lumped into a singular condition, but as you probably know, there are actually two very different kinds of diabetes, labeled type 1 and 2 (There is a third type, known as gestational diabetes that can sometimes occur during pregnancy but is not necessarily permanent). Type 2 is by far the most common, and the IDF’s website has a great infographic explaining the basics. So what’s going on this month? Both the ADA and the IDF are coordinating a ton of ways to promote diabetes awareness during November, and if you’re unsure where to begin, here are a few ideas to check out:   Submit your photo of “A Day in …

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