Share On: Parkinson’s Awareness Month and PatientsLikeMe PD Community Anniversary

2 Comments / Parkinson's Disease, Patient Experiences / By

Did you know this April is both Parkinson’s Awareness Month and the 2-year anniversary of the PatientsLikeMe Parkinson’s community?  We invite you to celebrate with us all month as we share real-world patient insights and experiences of living with this disease…and we ask you to share on! The PatientsLikeMe Parkinson’s community has come a long […]

Share On: Parkinson’s Awareness Month and PatientsLikeMe PD Community Anniversary Read More »

Annoyed or Impressed By Your Therapist? PatientsLikeMe Mood Members Chime In

2 Comments / Mental Health, Patient Experiences / By

In a recent blog post by New York Times’ Tara Parker-Pope, PsychCentral highlights “The 12 Most Annoying Habits of Therapists.”  Launched a year ago this week, our very own Mood community has more than 1,300 patients using “Individual Therapy” as a treatment for their condition.  We asked them to tell us some of the habits

Annoyed or Impressed By Your Therapist? PatientsLikeMe Mood Members Chime In Read More »

Happy 1st Anniversary Mood Community!

Mental Health, Patient Experiences / By

A year ago today, PatientsLikeMe launched our combined Mood community for patients with depression, anxiety, bipolar, obesessive-compulsive disorder and post-traumatic stress disorder.  It was first announced to the world in Thomas Goetz’s article, Practicing Patients, featured in New York Times Magazine. Since then, more than 8,700 patients have joined the community, sharing detailed information about

Happy 1st Anniversary Mood Community! Read More »

A new gene for ALS: What sharing your genetics could mean for research

15 Comments / ALS, Patient Experiences, Rare Diseases, Research / By

In today’s issue of the journal Science two papers describe the discovery of a new gene for ALS (you can read the abstracts here and here). Around 90% of ALS cases are sporadic, i.e. we don’t know what causes them, but for 5-10% of patients the disease runs in their family (known as familial ALS,

A new gene for ALS: What sharing your genetics could mean for research Read More »

Patients Like Me Can Run 13.1 Miles With Fibromyalgia

Fibromyalgia / By

13.1 grueling miles.  A half marathon.  Running that distance for anyone is a challenge that takes months of training and dedication.  Imagine running that distance having fibromyalgia. My close friend and PatientsLikeMe member, Minnie Lee, has fibromyalgia and courageously ran in the Surf City Half Marathon last Sunday.  This wasn’t even her first time running

Patients Like Me Can Run 13.1 Miles With Fibromyalgia Read More »

10,000 MS Patients and Going Strong…

1 Comment / Multiple Sclerosis / By

Today, the PatientsLikeMe Multiple Sclerosis (MS) community welcomed its 10,000th patient member! As we end 2008, more than 10,000 patients in our community are coming together to share their life experiences on PatientsLikeMe. How much experience is that? Try more than 32,000 YEARS of collective experience with MS. More members than ever are sharing in-depth

10,000 MS Patients and Going Strong… Read More »

Scroll to Top