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How Patients Like You Use Your Treatments in the Real World: Two New Studies

Ever wonder how many patients like you are using drugs off-label?  Or how hard is it to take MS medications as prescribed?  You’re about to find out. In January, the PatientsLikeMe R&D team published not one but two studies in the Journal of Medical Internet Research (JMIR) in an effort to provide answers about how […]

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Learning from Others: Newsletter Highlights 2011

In the spirit of the New Year, here are some highlights from our recent newsletter.  Read what patients like you have to say about what they’re most interested in learning from other patients this year. * * * (Amy) What are you most interested in learning from other patients this year? (bradley25 – Mood Conditions

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Antidepressant medication pill packet

Share your experiences with the antidepressant ADCO Mirteron

ADCO Mirteron is an international brand of mirtazapine, a tetracyclic antidepressant that is used to treat depression and, in come cases, insomnia.  At PatientsLikeMe, where more than 115,000 patients are sharing their experiences with prescription drugs, supplements and more, we have just one patient who reports taking ADCO Mirteron while more than 300 patients report

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Share and Compare: A PatientsLikeMe Year in Review (Part II – R&D)

The PatientsLikeMe research and development (R&D) team is excited about what we can all share and learn in 2011.  Here’s a look back at some of what patients like you shared with us, and what we then shared with the world, in 2010. The R&D team published and presented some unprecedented insights based on what

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Overcoming Obstacles – Newsletter Highlight 2010

Last week, we posted highlights from our December community newsletter interviews. As we close out 2010, we want to spotlight another question asked this month – one that is relative to all members, all patients (no matter the condition).  What obstacles have you faced and overcome this year? To review all of our newsletters, you

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Sharing and Learning with PatientsLikeMe

In December community newsletters (launched earlier this week), we asked some of our members to think about what they’ve shared and compared in 2010.  Below are highlighted answers from each interviewee across all nine community newsletters.  Thank you for your contributions. We also want to thank all of you who have contributed to the 90

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Patient Interview: “A Sense of Togetherness, Love and Unity”

This week’s “Treat Us Right” theme focused a lot on the sentiments and data you share every day to help others learn more about your real-world experiences.  We, at PatientsLikeMe, also like to just check in to see how you’re doing as a person, not just a patient.  Here’s an interview with member “jesus reigns,”

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Treat Us Right: Comparing our Community to the General Population

Our recent series entitled Share and Compare focused on how patients like you can better answer the question, “How do I put my experience in context?” The answer, in part, comes from how much information you share to help create that context of real-world patient experiences.  Think of it this way – with every piece of information

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One for All: The PatientsLikeMe “Welcome Wagon”

In yesterday’s post, we looked at some of the ways members of the PatientsLikeMe community are connecting with other patients and the value they are getting from it.  Today, we’ll highlight how one person can make an enormous difference and inspire you with her ability to connect with others. One method of reaching out to

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