Today’s patient has a loud and strong voice. At PatientsLikeMe, we hear you. You’re saying, “I know this disease, I know how it acts in the real-world, and it’s time to share that with others.”
With thousands of patients sharing data and experiences every day on our site, we’ve decided to launch a report that takes what you, the patient, knows and shares it with you, the patient community at-large. For obvious reasons, we’re calling it The Patient Voice.
The Patient Voice is a collection of wisdom, sentiments and experiences shared by patients like you regarding important issues you face today. The reports include PatientsLikeMe member tips, suggested checklists and questions to ask yourself, and real-world patient experiences, as well as some fun facts from about the PatientsLikeMe community.
The first report is from our Mood Conditions Community, representing patients with depression, anxiety, bipolar, OCD and PTSD, on the topic of inpatient therapy (or hospitalization). It’s a topic that comes up quite a bit in our forum, and patients are openly sharing their positive (and negative) experiences with one another. We’re now sharing some of the positive experiences with you. Take a look at the free report and let us know what you think. Share it with your friends and loved ones who might find it useful. And, please, join the conversation on PatientsLikeMe today. You have a voice, so let’s hear it!
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I am writing from Ontario, Canada. I thought the psychiatric in-patient advice contained one or two interesting suggestions, but found it was mostly pie-in-the-sky stuff for people like me. Whenever I’ve been in-patient, my opportunity for preparation was exactly zero – I never knew ahead of time. The mood changes always snuck up on me, and flowered suddenly without me realizing it. Only the people around me knew what was happening – and those only sometimes. Furthermore, my in-patient experiences were only positive for the first 2-3 weeks. After that, my condition tended to worsen, with feelings of persecution and paranoia developing. I was usually discharged when this finally registered with the authorities.