13 posts in the category “Cancer”

Life after lung cancer surgery: 5 recovery tips from patients

Posted 1 week ago by

PatientsLikeMe members have talked in the forums about what it’s like to recover from lung cancer surgery – and what most doctors don’t tell you. We’ve gathered some helpful post-surgery hints members have shared. (Hint: Join PatientsLikeMe for access to the Lung Cancer Forum.)

Many members have mentioned that the side effects of a lobectomy or other lung surgery can be more intense than they expected. “I had a right upper lobectomy 2 years ago – still have lots of pain and numbness – bras suck!” one member says.

“The surgeon wasn’t very informative and my doctor, bless his heart, hasn’t ever had a patient like me so doesn’t really know what’s normal and what’s not,” says another member. “I’m very thankful for this site, I have learned a lot from it.”

What can help?

  • Finding the right bra. Wear a looser sports bra, an old bra (without underwire) or a stretchy camisole with soft cups, to give some breast support but nothing too restrictive.
  • Setting yourself up for sleep. Stomach sleepers will need to get used to sleeping on their back or (maybe) side. Sleeping in a recliner, or using pillows or foam wedges to find a decent position in bed, can help you catch some Zzzs.
  • Treating your incision with care. Cold or rainy weather, and even chilly air-conditioning, can make scars extra sensitive, so try to stay warm and dry. One member advises applying vitamin E and unscented skin cream to help with healing.
  • Managing your pain. Members report using prescribed pain meds, Lidocaine patches, pain-relief ointment (like Icy Hot) and heating pads to deal with some of the pain.
  • Taking it easy. Go “very slow in the beginning,” says one member. “Resting on your back a lot, taking short and slow walks, not twisting the body, not carrying (heavy) things, not running, taking the stairs slowly… With these things, I was OK eight months after my operation. But I’m still very careful…”

Another word to the wise? Ask your doctor right away about any symptoms you’re not sure are normal, such as breathing issues, coughing or bleeding.

On PatientsLikeMe, more than 50 people have reported having surgery as part of their lung cancer treatmentLung lobectomy is the most commonly reported type of surgery, followed by pneumonectomy and lung wedge resection (click on these links to see treatment reports — logged-in members have access to more information).

Also, check out our recent write-up on some newer and less invasive procedures for lung cancer.

Have you had lung cancer surgery or will you be undergoing this procedure soon? Join our patient community or log in to see what else members have shared about recovering from lung cancer surgery.

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A possible Parkinson’s disease/melanoma link? Time for a skin check

Posted 2 weeks ago by

Now that summer has passed, have you had your skin examined? Studies have shown that people with Parkinson’s disease (PD) may have an increased risk for melanoma, so skin screenings are extra-important. Take a look at recent research and get some tips on monitoring your moles and skin.

Studies show…

A 2017 Mayo Clinic study found that people with either PD or melanoma are four times as likely to receive a diagnosis of the other disease. The researchers say the PD drug levodopa (which some people believe may play a role in melanoma risk) is not likely a factor in the PD/melanoma connection, according to McKnight’s. They found that the majority of melanomas were diagnosed before the diagnosis or treatment of Parkinson’s disease, so taking levodopa doesn’t appear to be a risk factor.

Future research should focus on genes, immune responses and environmental exposures that could cause the relationship, the researchers say.

Know your “ABCDEs”

Check out the Skin Cancer Foundation’s “ABCDEs of Melanoma” (click here to see images of examples), and make an appointment right away if you spot any of these warning signs:

A = asymmetry. Malignant moles tend to have an odd shape.

B = border. The edges of an early melanoma may be uneven or “scalloped.”

C = color. Watch out for moles that are a spotty mix of colors (from tan to black, or even shades of red, white or blue).

D = diameter. Melanomas are usually larger in diameter than a pencil eraser (but may be smaller early on).

E = evolving. Keep an eye out for any changes in your moles, such as size, shape, color, elevation, or another trait, or new symptoms such as bleeding, itching or crusting.

Also, keep in mind these other risk factors for melanoma, according to the Michael J. Fox Foundation for Parkinson’s Research:

  • Ultraviolet (UV) light exposure (psst: use sunscreen and protective clothing)
  • Caucasian race
  • Older age
  • Male
  • Family history of melanoma or personal history of melanoma or other skin cancers

The Fox Foundation is currently funding studies on the PD/melanoma connection, including one exploring the role of alpha-synuclein (a sticky protein) in both conditions, and others examining the genes or gene mutations involved in the two conditions. Learn more here.

On PatientsLikeMe

Some members report having both PD and melanoma. “I encourage everybody to go to a dermatologist, who has observed thousands of moles, on various skin types, and pay them to do a body scan,” says one member with PD and melanoma (fortunately, a biopsy showed his cancer had not spread). “Melanoma is not slow progressing like Parkinson’s.”

Has your doctor ever mentioned melanoma risk? Join PatientsLikeMe or log in to talk about Parkinson’s and melanoma in the PD forum.

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