PatientsLikeMe

PatientsLikeMe Attends 4th Annual ALS TDI White Coat Affair

Back in November, a whole group from the PatientsLikeMe team came together for a great cause and attended the 4th annual A White Coat Affair gala benefiting the ALS Therapy Development Institute (ALS TDI). ALS TDI, founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, is the number one nonprofit biotechnology organization dedicated to developing effective treatments for ALS. All proceeds from the event directly fund the research being conducted at ALS TDI.

The charity gala was held right after ALS TDI’s 10th Annual Leadership Summit, which featured in-depth scientific presentations from researchers and “thought leaders” on scientific developments, the PALS’ perspective and advice from pharma and biotech leaders within the ALS community. For the past 10 years, the Leadership Summit has brought together members of the ALS community for an intimate gathering to connect on the state of ALS research and progress being made toward a treatment.

The PatientsLikeMe team and other attendees traveled to the Westin Copley Place Hotel in Boston for A White Coat Affair and a special evening complete with a cocktail hour, dinner and live music. While there were some lighthearted moments (such as a cocktail called the Mad Scientist) there were also some very emotional moments that reminded everyone why we were there – to raise funds and awareness for ALS research.

Highlights of the dinner program this year included a presentation from Lynne Nieto, husband of Augie Nieto. Augie is Chairman of the Board of ALS TDI and Chief Inspirational Officer for Augie’s Quest, which has raised more than $44 million to fund research at ALS TDI. Anthony Carbajal also gave a powerful speech. Anthony was recently diagnosed with familial ALS at 26 years old and takes care of his mother, who is living with ALS as well. Check out his story if you haven’t already, or visit KissMyALS.org.

570 guests and 20 PALS attended A White Coat Affair for a memorable night committed to raising funds toward ALS TDI’s efforts to develop effective treatments for ALS. To view more photos taken during the evening, visit the event’s Facebook page – and congratulations to ALS TDI on 16 years of cutting-edge ALS research and leadership!

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1 comment

  • I really hope more effective treatment starts to be found for this brutal disease.

    To help spread the word about ALS,I thought you might be interested about a documentary about ALS that we have been making for four years, which I very much hope will raise much needed awareness about this disease. The film will air in the UK and with international broadcasters across the world.

    To help us do that we have also launched a social media campaign, so I would be really grateful for any support you can give in promoting, liking and sharing the links.

    Here are the links:

    https://www.youtube.com/watch?v=AjXou_9YLIk

    https://www.facebook.com/FilmingMyFather

    https://www.Twitter.com/VerveProds

    @VerveProds

    #FilmingMyFather

    And if you or friends are on Twitter, and it is possible to send several tweets over the next week or so that would be fantastic, tweets containing either our YouTube or Facebook link would be particularly helpful to raise awareness.

    Thank you so much for your support.
    Best wishes
    Liz