Search Results for: quality of life

New Quality of Life Index and More for Psoriasis

Are you one of the roughly 700 patients with psoriasis at PatientsLikeMe?  We’ve got some exciting new features just for you. At the end of 2011, we unveiled the Dermatology Life Quality Index (DLQI), a new 12-question survey that helps you measure how psoriasis affects your day-to-day life.   Answer the questions regularly to produce a […]

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Know Thy Self – Measuring Your Quality of Life

Last Fall, PatientsLikeMe introduced our Quality of Life (QoL) tool which is displayed on the profiles of members in the HIV community.  By answering a few questions, patients can see how HIV is impacting them – physically, socially and mentally.  Today, this same QoL measure is used by thousands of patients across the HIV community

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A Day in the Life of PatientsLikeMe Quality Assurance Engineer Brian Boyle

What’s it like to work at PatientsLikeMe?  We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments.  So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton, Research Scientist Timothy Vaughan, Biz Dev’er Arianne Graham, Product Manager Maureen Oakes and

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Dave’s Journey with Spinocerebellar Ataxia Type 8 (SCA8): Getting Back on the “Bike of Life”

Meet Dave (@SlowDave) Dave, a retired attorney, and avid mountain biker was riding in the car with his wife when he felt very dizzy, asked her to pull over, and collapsed on the side of the road in 2005. This incident sparked many subsequent trips to the emergency room and meetings with neurologists and other

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“Listen to yourself.” Member Daniela opens up about life with MS and psoriasis

Daniela (DanielaO) is living with multiple sclerosis and psoriasis  in Puglia, Italy, and loves crafts, art history, music and traveling. She recently opened up to us about getting her first diagnosis at age 14, managing multiple conditions, and how connecting with others on PatientsLikeMe makes her feel “present and part of a whole.” Here’s what

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“Strength will come, somehow, from somewhere” – PatientsLikeMe member Glow4life shares her journey with lung cancer

PatientsLikeMe member Glow4life was diagnosed with lung cancer (adenocarcinoma) this past June, and her story is a testament to never losing hope. She recently shared her experiences in an interview, and she spared no details in describing her challenges. Despite her terminal diagnosis, four rounds of chemotherapy and the sudden loss of her husband, Glow4life

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PatientsLikeMe in real life: reporting back from the PFF Summit

Dave, Rishi, and I spent a few days last month in sunny La Jolla, California – site of the biennial PFF Summit. Well, La Jolla is usually sunny… this year it was unseasonably cold and rainy! Nevertheless, not even the nasty weather could dampen the enthusiasm of more than 500 clinicians, researchers and (most importantly!)

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A Day in the Life of PatientsLikeMe Research Scientist Mike Massagli

What’s it like to work at PatientsLikeMe?  We’ll be revealing just that with our new blog series “A Day in the Life,” which features various employees from different departments.  To start this new series off with a veteran perspective, we interviewed Research Scientist Mike Massagli, PhD, one of the longest tenured employees of the company. 

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5 Tips to Help You Prepare For Your Next Doctor’s Appointment

When you aren’t feeling well, it can be easy to feel overwhelmed at a doctor’s appointment. If you’re experiencing new symptoms or if your old symptoms have gotten worse, you may feel anxious, and nervous, and may forget to ask important questions. Doctor’s visits are often pressed for time, which may add to your nervousness.

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7 Diet and Exercise Tips to Improve Multiple Sclerosis Symptoms

Have you ever eaten extra healthy for a few days? Meals consisted of green leafy vegetables, lots of fruit, lean protein, wholesome grains, and heart-healthy fats. After following a nutrient-dense diet for several days, you may have noticed improved energy levels, less brain fog, and better sleep. This is because the foods you eat have

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