10 results for “Transplant Games”

PatientsLikeMe Gets into the Spirit of the Transplant Games

Posted August 5th, 2010 by

The spirit of Team Mid New England and the U.S. Transplant Games has infiltrated PatientsLikeMe!  We have just gotten back from an amazing trip to Madison, WI to watch Team Mid New England take to the athletic fields and to spread the word about our transplants community at PatientsLikeMe.

nkfne_smWe had the opportunity to sponsor Team Mid New England at the Games. Their blue shirts were easy to spot in the crowds of more than 7,000 people.  They wore our logo on their backs and traded our pins to spread the word about PatientsLikeMe.   On Saturday, we were able to gather them all for this fantastic team photo.   (See all of our photos from the weekend here).

Their energy and excitement was contagious.  Check out this video of Team Mid New England marching into the Coliseum during Opening Ceremonies.

At the Transplant Games, transplant recipients, living donors, and donor families all come together to celebrate life and honor their loved ones.  They say they come for sport, but really they come to share their stories, to meet one another, and to be a part of something greater than themselves.  It’s not dissimilar at PatientsLikeMe where transplant patients can find patients like them, share their story, learn from one another, and contribute to research.

Listen to YellowIsJoy, a current transplant community member talk about her experiences at the Games and on PatientsLikeMe.  You can feel her energy and her appreciation after receiving 3 life saving kidney transplants.   She is making the most of her life and stresses the importance of choosing new adventures every day.

The athletes, donor families, and friends that comprise Team Mid New England were gracious, energetic, and wonderful cheerleaders for PatientsLikeMe.  Congratulations to the team for bringing home more than 20 medals!  Let’s make it 40 in 2012!

PatientsLikeMe member mcotter


U.S. Transplants Games – Here We Come!

Posted July 27th, 2010 by

A few weeks back, we were delighted to join the National Kidney Foundation of New England at their Transplant Games Team Meeting to give a demonstration of the PatientsLikeMe Transplants Community. Later this week, we’ll be joining Team Mid-New England as their official t-shirt sponsor as they “take the field” for the U.S. Transplants Games in Madison, Wisconsin.
trans_profile

As part of our demonstration, we focused a lot on the value of creating a patient profile. Everything you’d want to know about your transplantation journey is charted on the profile to make it easier to visually see what’s going on with you before, during and after your transplant.  Many of our patients print out their profile charts and share them with their doctors.  Beyond the individual learning, the power of the patient profile is that it is shared with the entire community.  The treatment and symptom information you enter gets rolled up into community reports so you can see if what you’re experiencing is similar to the experiences of others, and you can help others do the same.

At the end of the session, we had a lot of great questions.  Here are a few:

  • Can you chart how exercise is helping you minimize symptoms after your transplant? Yes – check out the “exercise treatments” that patients are currently adding to their profile.
  • Will PatientsLikeMe partner with smaller nonprofits (like the Kidney Transplant/Dialysis Association (KTDA) and Quarter Century Club? We’re always open to speaking with nonprofits to see how we can work together. Send an email to partners@patientslikeme.com if you think a nonprofit you are involved in would like to partner with PatientsLikeMe.
  • Can you only contact other patients publicly through the forum? No. The forum is a great gathering place for many of our patients, but you can also develop relationships one-on-one by sending private messages or leaving comments on other profiles.
  • Do you have leaflets I can distribute at my dialysis center? Absolutely. If you’re interested in spreading the word in your support groups, you can download some materials on our Tell The World page. If you’d like to receive some more official leaflets to distribute at your Dialysis Center, send us an email with your request at goodies@patientslikeme.com.

We are excited to attend this year’s U.S. Transplant Games.  This will be our first time at the Games, so we are grateful to have our Team Mid New England pros guiding the way.  If you’re coming to the Games, please stop by our booth at the Expo to say hello and pick up some goodies.  And, if you see our logo on the back of a Team Mid New Englander, be sure to ask them for a limited edition PatientsLikeMe Pin.   See you at the Games!

PatientsLikeMe member mcotter PatientsLikeMe member lscanlon